Of its 4.9 million Medicaid enrollees, Florida purged about 300,000 from its Medicaid rolls when the federal government removed protections put in place to keep everyone covered during the pandemic. Health-care advocates are voicing concerns over those being kicked off the rolls for procedural issues, such as failing to respond or sending in documents as requested.
Lynn Hearn, a Florida Health Justice Project staff attorney, said she's also concerned about a change of plans at the Florida Department of Children and Families. The agency initially said it would hold off on Medicaid redeterminations for kids younger than 21 with medically complex conditions until next spring.
"Another variation from their plan is that medically complex children were scheduled to be last during the 12-month process," she said, "and we are hearing from many who are being terminated early in the process."
Before dropping people from Medicaid, DCF said it contacts them multiple times through texts, letters, emails and calls. Instructions on how to renew coverage are supposed to arrive 45 days before someone's renewal date.
Hearn said her organization has posted a toolkit on its website for anyone needing a guide to manage the changes.
Marcus Robinson, UnitedHealthcare's president of markets for the individual and family plan business, said people might have options for insurance coverage through circumstances that are considered a "qualifying life event," which makes someone eligible outside of a yearly defined enrollment period - such as the sudden loss of employment.
"Other things that are qualifying life events, change in marital status - so, getting married or divorced," he said, "and then, having a baby - either through adoption, or having a baby naturally. Also, a death in the family."
Robinson said little-known qualifying events include moving or relocating and changes in your income. The Unitedhealthcare.com website also has more information. Because Florida is among the handful of states that have not expanded Medicaid for low-income adults, groups such as the Florida Health Justice Project have said it is hearing "heartbreaking" stories from people with no health-coverage alternative.
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A Chicago mom who lost her son to cancer in 2022 is using the occasion of Mother's Day to call on Illinois lawmakers to pass medical aid-in-dying legislation.
Suzy Flack's 34-year-old son Andrew was a special-education teacher and avid hockey player living in California when he learned his cancer was terminal. Rather than return to his home state, he stayed in California, where medical aid-in-dying is legal.
Now, with such legislation under consideration by Illinois lawmakers, Suzy Flack is using social media to urge its passage.
"Like I said in the video, I didn't realize how horrific cancer was," she said. "So, I would really like to stress that that comfort level that he had because he had the control over his death."
The legislation would allow mentally capable, terminally ill adults with six months or less to live the option to request a prescription for medication they could use to end their life.
According to a 2023 survey by the group Compassion & Choices, more than 70% of Illinois residents support such a law, while 17% would oppose it.
With no legal way to end his life in his home state, Flack said her son was unwilling to leave California because he wanted a peaceful death.
"That option of having the medication was strong enough to keep him there, despite missing his family," she said, "and certainly, it would have been easier for all of us if he had been back in Illinois."
In addition to California, medical aid-in-dying is authorized in ten other states and Washington, D.C., while two additional states - Wisconsin and Massachusetts - are considering legalization. The Chicago-based American Medical Association has not endorsed the legislation.
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It's National Nurses Week, and educators and healthcare officials say there just aren't enough of them to go around. A combination of retiring baby boomers and nurses who chose to leave the field after the pandemic has left a projected shortfall of more than 5,400 nurses in Nebraska's hospitals, clinics and long-term care facilities.
Linda Hardy, Nebraska Nurses Association president, explained that the system is not training enough new nurses to fill the vacancies.
"I think across the country we have a nursing shortage," she intoned. "But the other thing we have a shortage of are nurse educators - and also, clinical sites for student nurses to be able to practice their clinical skills."
According to a Nebraska Health Care Workforce Collaborative report, 66 of the state's 93 counties have been declared medically underserved, and nine have no nurses. The report points to degraded "emotional health and well-being" as the main reason for staff shortages.
Hardy added healthcare providers and state officials are studying how to increase the investment in educational facilities and clinical sites to train new healthcare workers, and said one goal is to recruit them when they are young.
"There's a collaborative effort to try and get more healthcare workers, not just nurses but radiology techs, pharmacists, etcetera, into the pipeline from high school kids. So, that's a good thing," she insisted.
Carole Johnson, administrator of the Health Resources and Services Administration, said her mission during National Nurses Week is to highlight the vital role nurses play on the front lines, providing care, comfort and support to patients every day, but added the best way to honor them is to support them from training through retirement.
"You have to be investing in the nursing workforce. And so we're providing scholarships, loan repayment, stipends, upskilling - a whole host of training initiatives to really help ensure that we can recruit people into nursing and that when they're there, that they stay," she continued.
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Birth doulas assist new moms with the stress, uncertainty and anxiety of childbirth, while another type of doula offers similar support to those who are dying.
Death doulas, or end-of-life specialists, give spiritual and emotional support to people nearing death in a nonmedical setting. The word 'doula' comes from the Greek word 'doule,' meaning 'female helper.'
Kim Burgess, end-of-life doula and board certified adult geriatric nurse practitioner for Comforting Transitions, an elder care facility in O'Fallon, said fulfilling a dying person's wish to be in their desired setting is important.
"When I was in the home, primarily geriatric population, people wanted to stay in their home; the comfort of their home, their own surrounding, their own food, their own loved ones," Burgess explained. "I loved to being able to support people in that role."
Training to become an end-of-life doula happens in workshops, with required reading and work-study assignments. Since it is not a federally recognized field, insurance companies do not cover the services. The Illinois Department of Public Health said in 2022, Cook County alone saw nearly 46,000 deaths. Almost 20,000 were between ages 65 and 84.
Death, or what is sometimes called "the other side," can produce feelings of fear, or a sense of denial, especially if a terminal condition has been diagnosed. Burgess observed it is a 24-hour job for loved ones helping someone in their final days or weeks. She has encountered families who are unprepared for the caregiving needs.
"A lot of times, their family is saying, 'We're just overwhelmed, and we have hospice involved, but we still feel like we need some more support,'" Burgess recounted. "An end-of-life doula can be there, giving the family reassurance or making some slight suggestions on how to comfort their loved one."
Doulas can also help plan an advance directive, instructions a person can leave behind about their funeral service or cremation, what to do with a pet or help writing a loving message to family and friends.
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