AUSTIN, Texas - Este año Texas se sumó a 30 estados de la nación al adoptar la ley “CARE Act”, la cual exige a los hospitales identificar a los cuidadores familiares cuando den de alta a un paciente, y darles instrucciones para atenderles en su convalecencia. Pero algunas instancias de defensoría, como la AARP Texas, dicen que debe hacerse aún más para ayudar a los 3.4 millones de cuidadores familiares.
La nueva ley estatal entró en vigor este año para ayudar a que la gente de Texas que debe cuidar a sus seres amados enfermos o que padezcan alguna incapacidad, pero algunas instancias de defensoría opinan que debe hacerse aún más.
Las estadísticas muestran que lo miembros de la familia que asisten a parientes enfermos o envejecidos fueran reemplazados por personal pagado, le costaría al estado más de 35 billones de dólares al año.
Y de acuerdo a Amanda Fredriksen, directora de defensoría y difusión en la AARP Texas, eso todavía sin contar el costo personal que puede significar para esposas, hijos y otros miembros de la familia que muchas veces ofrecen una atención constante a sus parientes que no pueden cuidarse solos.
“En Texas tenemos 3.4 millones de cuidadores familiares. Estos son familiares que no reciben paga y están cuidando a su ser amado como cualquiera lo haría, y creo que la gente no se da cuenta de cuánta gente está viviendo esta misma experiencia.”
Texas se ha sumado a otros estados del país en adoptar la Ley CARE Act, una medida para apoyar a los cuidadores familiares cuando un paciente es dado de alta del hospital. Fredriksen dice que eso es un buen comienzo, pero sigue sin resolver otras preocupaciones que enfrentan los cuidadores, como salud, seguridad, problemas financieros, legales y del equilibrio de vida.
Explica que la ley Care ACT exige que los hospitales pregunten a los pacientes si quieren designar un cuidador o cuidadora.
“Si el paciente dice “sí”, se espera que diga el nombre y que notifique a ese familiar que su ser querido será dado de alta, luego se les da oportunidad de repasar juntos las instrucciones de cuidados posteriores y resolver sus dudas.”
Fredriksen destaca que hay mucho más que brindar cuidados a tiempo completo. Sharon Goldblatt, de Round Rock, es cuidadora única de su esposo, cuyas necesidades de atención las 24 horas del día a veces significan una gran carga de estrés personal.
“Es un estado de ansiedad constante, porque nunca sé si tendrá un ataque o cómo se revelará su narcolepsia cualquier día. Así que realmente necesita cuidados constantes, o sea que mi vida toda gira en torno a su salud.”
La AARP ofrece una guía en línea (en inglés) para ayudar a las personas cuidadoras, incluso un foro donde pueden contactarse con otras para intercambiar información y apoyo: https://www.aarp.org/caregiving/s
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A recent report examined how some rural Tennessee hospitals have managed to stay afloat despite financial challenges.
The report includes interviews from staff at five different rural hospitals, which range in size from 25 to 125 beds.
Judy Roitman, executive director of the Tennessee Health Care Campaign, said some of the hospitals are drowning in uncompensated care. She explained as part of their research, they did an interview with a CEO from a rural hospital in Kentucky who expressed the importance of Medicaid expansion.
"Kentucky has expanded its Medicaid program and Tennessee has not," Roitman pointed out. "He said that's the key to our stability is actually having the funds coming in to treat these patients. And the CEOs and others in Tennessee hospitals said it would make a huge difference to have that federal funding."
Roitman added the federal government is offering Tennessee a nine-to-one match. If Tennessee were to expand Medicaid, at least 330,000 people would gain access to coverage.
Roitman pointed out the report suggested further steps hospitals could take, including examining how they are reimbursed for services provided. She noted private insurance plans tend to provide the highest reimbursement rates, and said more funding is needed to support TennCare, which does not cover enough of the cost.
"TennCare is all managed by managed-care organizations," Roitman explained. "They negotiate with every hospital about how they're going to reimburse and the big hospitals have some leverage to demand better payment and the smaller hospitals are just, they're just not getting paid."
Roitman added the report credited strong community engagement and effective hospital leadership as key factors in staff retention. Robust management and maintaining an engaged workforce significantly affect a hospital's viability, according to the report.
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Medicare and Medicaid are key sources of health coverage for many Americans and some people qualify for assistance under both programs. With lagging enrollment for the unique plans, outreach efforts are underway.
According to KFF Health News, only about three in 10 people who qualify for Dual-Eligible Special Needs Plans were enrolled in 2021. Experts said the option is designed for people who need additional help because of disabilities, certain health conditions or their age.
Dr. Gina Williams, associate medical director for UnitedHealthcare, said the plans try to take a dynamic approach to serving those eligible.
"Everything from managing your wellness to managing your behavioral health needs and then everyday needs," Williams outlined. "It's kind of a more comprehensive package for people who need a little bit more support."
Everyday needs include meal benefits and bathroom safety devices. The National Council on Aging said D-SNPs aim to provide a more streamlined coordination of care because there is assistance in arranging the services. Wisconsin's enrollment numbers are similar to the national rate, at 28%.
Christine Huberty, lead benefit specialist and northern region supervising attorney for the Greater Wisconsin Agency on Aging Resources, said a tricky component of the plans is navigating provider network restrictions. A rural resident might have to travel farther to see a doctor covered under the plan and she cautioned it warrants careful research when enrolling.
"I would say first and foremost, look at the provider network restrictions," Huberty advised. "Look at what's available in your area."
Meanwhile, Williams noted the push to get more eligible people to sign up coincides with more awareness around preventive care in a post-pandemic world.
"Everybody's kind of going into a phase where they're not only thinking about acute illness, but they're thinking about overall care," Williams observed. "What was the impact of the pandemic from a psychological standpoint? Do you need more support and then you also need more coordination of benefits?"
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In Mississippi and across the country, Community Health Centers are getting a funding increase, thanks to Congress passing a bipartisan spending package.
Community Health Centers in Mississippi serve patients without regard to their insurance status or ability to pay. More than 20 locations in the state provide medical care to more than more than 380,000 people.
Joe Dunn, senior vice president of public policy and advocacy for the National Association of Community Health Centers, said roughly one in 11 Americans gets their care from this type of clinic.
"Community Health Centers are the largest primary care network in the nation, providing care for 31 million Americans," Dunn pointed out. "This network is critically important, because they provide primary care, behavioral health, dental; just an array of services that are so critically needed."
Dunn emphasized more can be done. Research shows more than 100 million Americans need better access to primary care. Community Health Centers in Mississippi also support more than 4,000 jobs and about $678 million dollars in economic activity in the communities where they're located.
Dunn noted the increased funding from Congress will help the clinics provide more comprehensive care and reach more underserved patients, especially in rural communities, which ends up saving the state money.
"By incentivizing people to go get primary care, you alleviate more downstream costs," Dunn emphasized. "There's fewer hospitalizations and complications from chronic conditions, based on preventive screening and care at the outset."
The Congressional Budget Office reports the increase in funding for Community Health Centers just through the end of this year will reduce federal spending on public health insurance programs by more than $700 million.
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