Memory care facilities in Arizona have a new set of rules intended to improve quality of care for patients and ensure more accountability for providers.
Brendon Blake, director of advocacy for AARP Arizona, said the set of rules, approved by the Governor's Regulatory Review Council last week, are a big win and an improvement over what he said had been a lack of guidance for facilities.
The changes are a result of House Bill 2764, signed into law last year. Blake pointed out the rules should fill in gaps by requiring dementia-specific training for memory care staff and managers, stricter monitoring and enforcement, and new procedures to prevent those with dementia from walking out.
"Right now, there's no statutory or regulatory standard that's being held to," Blake explained. "It's really on the consumer themselves to do a ton of work, in an interview with that facility, to know if their level of what they call 'memory care' is really actually best practices across the country."
The new rules are set to take effect July 1, although the Arizona Department of Health Services is expected to give facilities a grace period to come into compliance. Blake added the rules also increase penalties for facilities not in compliance or repeat offenders.
Blake stressed the new rules are the result of 18 months of work. While some have expressed concerns they might be too vague, he argued they are a huge step in the right direction.
"The problem with being too specific is that Alzheimer's disease may be the most common form of dementia, but it is not the only form of dementia," Blake noted. "We want training to be robust enough that it can still cover a lot of ground, so that way, staff and managers can handle all kinds of dementia."
To those considering a memory-care facility, Blake encouraged people to ask how they plan to start implementing the rules.
"Is it commensurate with the training that is being required of them now?," Blake asked. "On the facility side of things, I think it is important that all of them know that the department has committed to continuing to do stakeholder meetings, to provide assistance."
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A former Wisconsin mayor said the new federal budget will only worsen the current aging crisis families like hers have already been facing.
Analysis from the Congressional Budget Office suggests President Trump's budget bill will trigger automatic cuts to Medicare due to an expected increase in the national deficit.
Judy Karofsky, a former mayor of Middleton, said it would affect hospice services and end-of-life programs already in need of greater funding. She explained when her mother was 99, the local hospice agency determined she was not dying soon enough and abruptly discontinued her services. She explained how it also triggered her eviction from the assisted living facility where she was at the time.
"This happens in this country," Karofsky emphasized. "My mother was 99-and-a-half when that was decided. We were on our own for a matter of months. She did die within the next six months, just before she turned 100. It was cruel!"
Karofsky stressed cuts to Medicare would rob many of the most vulnerable Americans, like her mother, of their right to a dignified death.
Hospice provides patients and families with pain relief, medical equipment, nursing care and spiritual support. Studies show hospice saves Medicare and families money by reducing overall health care spending. Karofsky said without it, families are faced with financial burdens few can bear.
"I thought before I was involved with my mom's hospice care, that hospice was a charity," Karofsky noted. "I understand now that every hour of help, every service, every product that's brought to a hospice recipient is reimbursed through Medicare and every hospice agency is beholden to Medicare."
The number of Americans aged 65 and older is expected to more than double over the next 40 years.
Karofsky argued the issue of underregulated assisted living facilities will worsen the current aging crisis across the country. In her book, "DisElderly Conduct, The Flawed Business of Assisted Living and Hospice," Karofsky recounted her mother's negative experience at six assisted living facilities in Wisconsin and called for action to address the ongoing crisis.
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The nation's largest advocacy group for people age 50 and older is investing more than $4.2 million, including more than $75,000 in Colorado, to help make communities more livable for people of all ages.
AARP Colorado Associate State Director Marissa Volpe said the city of Fort Collins won a $20,000 AARP grant to host a series of hands-on workshops, in both English and Spanish, to make it easier for low-income residents to remain in their homes as they get older.
"This is going to focus on plumbing 101, water conservation for mobile homes and senior apartments," said Volpe. "And the event aims to really build do-it-yourself skills, reduce maintenance costs and support aging in place."
AARP's Livable Communities initiative has invested more than $24 million in some 1,700 projects since 2017, including 40 in Colorado.
The program funds innovative projects meant to inspire change in public spaces, housing, transportation and more.
This year marks AARP's most substantial investment in rural communities to date, with 45% of grants going to these areas.
The grassroots group Commún was awarded more than $18,000 to develop an emergency disaster plan for the Loretto Heights Resilience Hub in Southwest Denver.
Volpe said this community-driven effort will help empower local navigators, known as promotoras, to deliver disaster preparedness and other critical information to older residents.
"It's the idea to capacitate those on the ground," said Volpe, "the folks you might see at church on Sunday, the folks you might see in the supermarket - with the necessary information."
Bike Durango won a grant of more than $12,000 to install a temporary bike lane on Junction Creek Road.
Volpe said the lane will promote a safer environment for walking and cycling, and help people access multiple municipal amenities.
"Expanding pedestrian safety, walkability, and bikeability in communities," said Volpe. "This is a big point of making communities livable and reducing car traffic."
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Eastern Kentucky is still trying to recover from the decline of coal production and a regional nonprofit will soon kick off a digital training initiative for older adults in counties in need of extra job skills.
The nonprofit Shaping Our Appalachian Region was awarded a Community Challenge grant from AARP to help get this program off the ground. Participants will receive free training on artificial intelligence-related tools, Microsoft Office and internet safety.
Colby Hall, executive director of the group, said the classes send a message: Just because a key industry is no longer a force, it does not mean people living here do not have a future in these parts.
"We have a lot of really awesome, hardworking, passionate, caring people that don't want to have to leave to find opportunity," Hall explained.
Whether it is volunteering or seeking a new job later in life, Hall argued communities cannot let older adults fall behind because they have not used much digital technology. He stressed they bring years of knowledge and life experience to a project or business. Beyond remote work opportunities, labor analysts said health care and aerospace are among the in-demand sectors in the region.
As they put the final touches on the program, Hall added they want to ensure people living on a fixed income still have access to devices and other technology after the training.
"We also are going to be able to leverage our office to be able to have rental equipment," Hall pointed out. "They can use computers and have access to internet in the office."
Shaping Our Appalachian Region is based in Pikeville but the training will be offered out of its Whitesburg location. Hall noted they hope to start training the first group later this summer.
AARP Kentucky said this year, a total of eight organizations across the state will share $84,000 in Community Challenge grants.
Disclosure: AARP Kentucky contributes to our fund for reporting on Budget Policy and Priorities, Health Issues, Senior Issues, Urban Planning/Transportation. If you would like to help support news in the public interest,
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