SANTA FE, N.M. -- For the third time in five years, New Mexico lawmakers are considering legislation to allow a terminally ill patient to seek prescription medication from a healthcare provider, which they could use if they decide to end their own life due to unbearable suffering.
After passing in the House, the Senate will consider the "Elizabeth Whitefield End-of-Life Options Act," modeled after similar laws in other states.
Dolores Huerta, American labor leader and civil-rights activist, has joined the cause to get House Bill 47 passed.
The 90-year-old Huerta said mentally capable, terminally ill adults should be allowed to obtain the medication to die peacefully.
"The fact that there is an alternative, and that people can make a choice that they want to end their life in a graceful and a peaceful manner, with their loved ones around them, I think that is something that's very important," Huerta explained.
The New Mexico bill is named for Elizabeth Whitefield, an Albuquerque family law judge and attorney, who advocated for a version of the bill before dying in 2018 following an 11-year battle with cancer.
For the third time, Rep. Deborah Armstrong, D-Albuquerque, is co-sponsoring the bill. Armstrong has a 39-year-old daughter she said has battled cancer for 20 years and is running out of treatment options.
Armstrong said if passed, the state law would be very specific about which patients are eligible.
"They have to be terminal; they have to be mentally competent; they have to be able to self-administer," Armstrong outlined. "Two providers have to affirm that they're eligible on all counts."
The bill also protects all healthcare providers from civil and criminal consequences, and they can opt out of writing such prescriptions.
Huerta believes since the start of the pandemic, many more Americans are contemplating healthcare planning and end-of-life decisions.
"People don't often think about making a plan for the end of life," Huerta observed. "I know that if my mother would have had that choice, even though she was a very devout Catholic, that she would have taken it. You might even say that it's a civil right that people have."
In neighboring Colorado, a report on that state's End-of-Life Options Act, passed by voters in 2016, shows an uptick in participation, both by physicians and terminally ill patients.
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February is American Heart Month and some Minnesota families are sharing their experiences with a sometimes overlooked disease among newborns: congenital heart defects.
Studies show congenital heart defects are the most common birth defect in the U.S., affecting nearly 40,000 babies each year. The American Heart Association said thanks to progress in the world of research and treatments, outcomes have improved. But families still find themselves in delicate situations.
Stephanie Johnson is a Minnesota mother whose son Henry was born with a syndrome restricting oxygen supplies to the body. Henry endured several surgeries and now lives a mostly normal life like kids his age but the worry is not over.
"We also know that the honeymoon period doesn't last forever," Johnson acknowledged. "At some point his heart's gonna get tired and he'll be looking at likely a heart transplant at that point."
Johnson hopes for additional medical breakthroughs but she and health experts noted congenital heart defect research is grossly underfunded. Another complication is government spending cuts sought by the Trump administration and the potential impact on agencies such as the National Institutes of Health. Policy experts say the research arm has already been dealing with flat funding levels.
In the absence of government support, current research heavily relies on awareness campaigns involving families navigating health scares. Johnson is among those trying to get the issue on the public's radar.
"We need to move science forward," Johnson urged. "Creating awareness for this is just incredibly important because awareness leads to funding, and funding leads to hope, and we're hoping for a cure."
Studies indicate congenital heart defects are underdiagnosed because milder symptoms are not always caught at birth. It means the disease is detected later in childhood or when the person becomes an adult.
Minnesota's Mayo Clinic and its HeartWorks program, as well as the Heart Association, are part of a network of health entities pushing for research advancements.
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For Pennsylvanians with disabilities, there may be unexpected side effects to ending so-called Diversity, Equity, Inclusion, and Accessibility policies.
President Donald Trump has opted to eliminate DEIA initiatives in federal agencies and federally funded programs.
His executive order signed in January characterizes DEIA policies as "discriminatory."
But in Pennsylvania, Mallory Hudson - the director of the disability justice program at the Keystone Progress Education Fund - said a memo went out ordering the Justice Department's Civil Rights Division to not file any new complaints, motions to intervene, agreed upon remands, amicus briefs, or statements of interest.
"That means that the Department of Justice Civil Rights Division has been instructed not to file any new civil rights cases, right?" said Hudson. "And that includes ADA complaints. So, those are - that is one of the few ways that disabled people can even protect their civil rights."
She adds the Americans with Disabilities Act was first passed in 1990 under President George H.W. Bush, and its legal precedent was based on the Civil Rights Act of 1964.
Hudson said another potential concern is the future of the Inflation Reduction Act under the new administration.
She noted that the IRA has allowed the Centers for Medicare and Medicaid Services to negotiate drug prices - and many are benefiting from its progress, like a $35 co-pay for insulin.
"Older adults and some folks with disabilities have been able to do that $35 copay, and for folks on disability, that's still a pretty big chunk of change," said Hudson. "But it was better than before - and then, that meant taxpayers were paying the difference."
Lower prices have been negotiated for 10 medications so far, cutting costs for patients and saving taxpayers billions.
It's estimated that if the IRA had been enacted in 2023, it would have slashed prescription drug spending by 22% - or roughly $6 billion.
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As health insurance premiums keep rising, Colorado lawmakers are advancing a bill to look at a universal Medicare for All option.
A 2020 report in the Annals of Internal Medicine finds administrative costs for private insurance, and the time doctors spend on billing paperwork, make up over one-third of all healthcare costs in the U.S.
Nathan Wilkes is a board member of with Health Care for All Colorado.
He said he believes the study called for in the bill will confirm previous research showing there is enough money to cover all Coloradans, by removing the middle-man.
"All of the public costs that we are paying, a lot of which are going to insurance subsidies and things like that," said Wilkes, "are more than enough to cover a system where there's a single pipeline."
Insurance industry executives say they've worked to lower administrative costs, and some politicians have argued private companies have better incentives to be more efficient than government services.
But administrative costs for private insurers in the U.S. are nearly six times the costs of Canada's single payer system.
Private insurers also argue they help keep overall costs down, in part by denying claims for procedures they see as unnecessary.
Wilkes said because of the industry's lobbying influence, voters will need to convince lawmakers to ensure all Coloradans can access health care.
"I think people recognize that there's a lot of profit extraction going on by companies that are not delivering any sort of healthcare services at all," said Wilkes, "while their family and friends are having to start 'Go Fund Me's' to pay for their cancer."
According to the Colorado Health Institute, some 265,000 Coloradans had no health insurance last year.
Wilkeds pointed out that Medicare's original aim was to eventually extend coverage to all Americans, not just seniors.
"Truth is that universal healthcare is as American as apple pie," said Wilkes. "Guaranteeing healthcare aligns with our nation's core values of life, liberty and the pursuit of happiness for everybody."
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