As Americans make end-of-year donations to their favorite causes, those that help children with cancer and their families say these households need support in difficult situations. A Minnesota-based group says inflation underscores the need.
The Pinky Swear Foundation has grown into a national philanthropic organization that will soon celebrate its 20th anniversary. The group's marketing manager, Jake Leif, said it's important that people also support cancer research and medical-debt initiatives, but groups such as his fill in the gaps in areas that might not receive as much attention when a family goes through this type of journey.
"When the child has cancer, life carries on," he said, "and so [there's] a lot of gas and grocery bills, rent, mortgages, car payments."
Leif said it makes it harder when a parent has to pause working, and the total cost of a child's cancer journey can exceed $800,000. He added that inflation has affected everyone's wallets this year, and these families are no exception. Support from the foundation, including individual donations, is designed to remove the pressure of those daily expenses.
While platforms such as GoFundMe are another good tool, Leif said they can only do so much when a situation quickly overwhelms a family's finances.
"We hear from families all the time that they had a beautiful nest egg, they had a healthy, healthy savings account," he said, "and childhood cancer came through and just blew it down."
The organization also will observe national Pinky Swear Day on Sunday. That proclamation originated from action in 2014 by then-Minnesota Gov. Mark Dayton. It reflects how the group was inspired when a 9-year-old boy named Mitch, who was diagnosed with cancer, gave his savings to families on the pediatric oncology floor where he was receiving treatment. Before his death, he asked his father to promise to carry out this mission moving forward.
get more stories like this via email
An event in Phoenix today will celebrate and highlight the power of collective giving in the Grand Canyon State.
Ilyasah N. Shabazz, senior operations and communications director for the organization Philanthropy Together, said Arizona is among the states with some of the most diverse set of "giving circles" advocating for a wide range of issues that affect local communities.
These groups bring together folks with shared values to decide where they should invest a gift, which Shabazz added isn't always financial.
"It is also about using our voice," said Shabazz, "so when you see that there are people advocating, they're using their voice, they're giving their time and volunteering their talent."
Shabazz called collective giving a "movement" in Arizona.
Circle Up Arizona's free event will take place from 5:30 to 7:30 p.m. at the Anchor Centre Building Courtyard.
The event is open to all current giving circle members, collective giving networks, and anyone looking to learn more.
Shabazz said groups in Arizona are coming together around a range of issues - ranging from affordable housing, to helping protect and preserve and responsibly manage Arizona's natural resources, to supporting initiatives and giving circles that are led by leaders that are from communities of color.
She added that giving circles not only help communities, but members themselves.
"That could mean with their professional pursuits, but also a lot of giving circles who are finding belonging by being part of these groups," said Shabazz, "and when you think about the trends in loneliness and isolation, those feelings that individuals are having, a lot of people are happy to join these groups and find community."
Research shows three-fourths of those who participate in collective giving report an increased belief in their social influence and feeling that their voices matter on social issues.
Shabazz added that women have also been an influential force within the movement, with 84% of giving groups reporting more than half of their membership is female.
get more stories like this via email
CORRECTION: An earlier version of this article incorrectly stated that Century 21 had raised more than $30 million. The correct amount is more than $3 million. (5:48 p.m. MDT, July 24, 2024)
More than 60 million Americans identify as disabled and many of them turn to nonprofit agencies such as Easterseals for therapy and other assistance.
The organization that became Easterseals was founded more than 100 years ago and has become the largest nonprofit health care agency in the country.
Kendra Davenport, president and CEO of Easterseals, said seeing to the health and wellness of more than 1.5 million people with disabilities is only possible with its team of national corporate sponsors, who collectively raise millions of dollars each year.
"It's critical because, unlike a for-profit, nonprofits have to raise their budget, whether they're raising it through government grants, foundation grants or corporate funding," Davenport pointed out. "And then, of course, there's the funding that comes in through individual donations. That's what sustains nonprofits."
As an example, Davenport cited Century 21 as a partner, raising more than $3 million in 2023 and $138 million during the life of its affiliation.
Easterseals has more than a dozen other corporate partners, including companies like Comcast-NBCUniversal, Coca-Cola and Delta Air Lines.
Davenport explained Easterseals got its name in 1934 from the practice of having donors put a stamp or seal on their donation envelopes. She noted the organization and its dozens of local affiliates work to enhance quality of life and expand local access to health care, education, and employment opportunities for children and adults.
"We provide essential services and on-the-ground support to millions of individuals and their families every year, from early childhood to the critical first five years," Davenport emphasized. "These include autism services, transportation, medical rehab and employment programs that target and assist veterans and senior citizens."
She added it is an ongoing challenge to extend the Easterseals brand because, despite more than a century of service, very few people understand the scope of what the organization does.
"Sixty-one million Americans identify as being disabled," Davenport reported. "That's a quarter of the American population. More people need to understand just how many people are disabled so that we can ensure that our world becomes more inclusive, more equitable and more accessible."
get more stories like this via email
A new report argued many charitable foundations need to examine the origin of their wealth and repair harms done.
The National Committee for Responsive Philanthropy used publicly available information to examine how historic business fortunes behind some foundations were made. Drawing on historic examples of businesses profiting from systemic racism and discrimination, the report titled "Cracks in the Foundation" stressed the need for philanthropic organizations to do their own research, connect with Black communities, and move charity dollars toward repairs.
Claire Dunning, assistant professor of Public Policy at the University of Maryland, served on the report's advisory committee and said foundations can seek partnerships including local history centers to help with the process.
"This doesn't have to be a private, or sort of closed-off process," Dunning contended. "It can be one rooted in transparency and inviting people in. And again, that can be uncomfortable. But I would argue that's not an excuse to not begin this important work."
The report presented case studies tracking the economic history of eight foundations in the Washington, D.C., area. The study's authors said they seek to make difficult conversations easier and are presenting the case studies as educational guides for an accountability and healing journey.
In looking at historic harms, the report focused on four sectors: media including anti-Black rhetoric; housing including discrimination, segregation and displacement; employment including stolen labor; and health care including mental and physical harm and neglect. The report assessed harm using both quantitative and qualitative methods. Dunning stressed in looking to the historical record to find evidence of past harm, researchers must take a broad view.
"We need to think about how newspaper accounts or advertisements for a particular neighborhood that talk about restrictive covenants. That's a form of evidence," Dunning pointed out. "We can think about oral histories of people who are displaced from certain neighborhoods or who were denied equal wages in an employment situation, that's a form of evidence."
The Federal government requires private foundations to use their assets to benefit society. Each year they must distribute at least 5% of the market value of their endowment to charitable purposes.
get more stories like this via email