As World AIDS Day turns 35, the mother of an Indiana teen who became the public face of the disease is a reminder of the importance of never forgetting the hard work of medical researchers and the victims lost in the frenzy to find a cure.
More than 40 million people have died from AIDS, including Ryan White, who grew up in central Indiana at a time when not much was known about it and medicine offered few treatments. Ryan contracted the disease during a blood transfusion at age 13. He became a staunch advocate against discrimination and helped change how Americans view AIDS.
Jeanne White-Ginder, who eventually left Indiana for Florida, said it is imperative to remember all the lost lives.
"That is so important that we remember all the people who got us to where we are today, because they are no longer here," White-Ginder noted. "And I'm not just talking about Ryan, because Ryan was a face, but there are so many people that did all the work."
Just five weeks after Ryan's death in 1990, Congress overwhelmingly passed the Ryan White CARE Act with bipartisan support. The legislation helps more people get tested for HIV and offers assistance to patients in all stages of the disease.
Ryan's mom emphasized AIDS affects people across the spectrum, regardless of labels.
"A gay person has it, a straight person has it, a blood transfusion person has it; it was for everybody," White-Ginder explained. "Once you have AIDS, you're just like everybody else who has AIDS; you're fighting to stay alive. And people fought to stay alive, and people dedicated their lives to get us to where we are today."
She added Ryan would have turned 52 next week.
His mom plans to travel to Indiana University on his birthday, where the Rural Center for AIDS/STD Prevention will present the Ryan White Distinguished Leadership Award to Dr. Joe and Sarah Ellen Mamlin.
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The Texas Department of Criminal Justice is facing a class action lawsuit calling for the agency to add central air conditioning to all its prisons.
Only 30% of the prisons in Texas have central air, and advocates say the sweltering summer heat is inhumane and impacts the physical and emotional health of people who are incarcerated. Four organizations, including the Lioness Justice Impacted Women's Alliance, are plaintiffs in the lawsuit.
Marci Marie Simmons, community outreach coordinator with the Alliance, said during her 10 years at the Dr. Lane Murray Unitin Gatesville, she was concerned about her health and the health of other women.
"I remember worrying about the insides of my body, like, 'What is this heat doing to my organs?' I watched older women have a really hard time in the summer. I watched women fall out with heat-induced seizures, " she explained.
The Texas House of Representatives has passed a bill that would require all Texas prisons have air conditioning by 2029, but the prison system only has to comply if the state provides the funding.
Over the last 10 years, 13 heat-related deaths have been documented in men's prisons in Texas. According to TDCJ policy, when the heat index is above 90 degrees, additional water, ice and cups are provided to people in prison, who also can wear shorts and t-shirts. In certain cases, they can receive permission to go into one of the designated air-conditioned spaces.
Simmons said about 90,000 people behind bars across the state don't have access to cool air.
"The lawsuit is asking for the same regulations that are on jails, which is to keep the temperatures between 65 degrees and 85 degrees. Currently about 30% of beds have climate control," she continued.
The Lone Star State is one of at least 13 in the country where all facilities are not air conditioned. Texas experienced the 2nd hottest summer on record last year and climate experts predict this year will be just as bad or worse.
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The message of the importance of heart health has arrived at construction sites. On Thursday, the American Heart Association is hosting its annual event, Hard Hats with Heart, in Seattle.
Americans are at high risk for cardiovascular diseases, and construction workers have high rates of some of the contributing factors, such as nearly half not getting enough exercise.
Mark Howell, senior vice president of Skanska U.S.A. Building and chairman of Puget Sound Hard Hats with Heart, said the American Heart Association hosts "Toolbox Talks" at job sites to raise awareness about heart health.
"We've had several workers find out they're diabetic and they didn't even know it, and the only way they found out was by going into the blood pressure challenge and ended up deciding to make a doctor's appointment and discovered they had diabetes," he said. "So, just bring that awareness into the industry so people can take care of underlying issues to improve their heart health."
Hard Hats with Heart takes place at The Shop in Seattle's Georgetown neighborhood on Thursday.
Howell added the event highlights cardiovascular risks specific to the industry and ensures people on job sites understand how to be prepared in case of an emergency, such as having hands-only CPR training.
"It's an evening where we celebrate the progress we've made, the number of lives that we've impacted with the message about proper heart health, and it's also an opportunity to hear from some construction workers who have personally been impacted by cardiovascular disease and have been able to maybe make some corrections in their lives as a result of that awareness," he explained.
More than 340,000 construction workers have been diagnosed with cardiovascular disease, according to the American Heart Association.
Disclosure: American Heart Association Western States Region contributes to our fund for reporting on Health Issues. If you would like to help support news in the public interest,
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Experts are traveling across the Commonwealth to help community professionals better understand and advocate for policies that help Kentuckians needing assistance with health care, housing, food, transportation, child care, suicide prevention and other resources. Thrive Roadshow workshops are free and available to the public.
Emily Beauregard, executive director of Kentucky Voices for Health, said attendees will receive updates on policy changes and funding for programs that impact folks in their communities.
"Our focus with the roadshow is to make sure community professionals who are interacting with folks on a daily basis really have the resources and skills that they need to advocate for the policies and programs that are right for their communities," she explained.
More information on Thrive Roadshow events happening in Frankfort, Pikeville, Williamsburg, Murray and elsewhere is online at ThrivingCommunities2024.
Tiffany Taul-Scruggs, patient service outreach manager with Mount Sterling Healthcare, said her team of Community Health Workers relied on the Thrive program to better understand the Medicaid Renewal process, so they could improve serving their patient population.
"One of the things that I really found useful is that they are a group that I can depend on, or if I need to call them to talk about things, they really do a lot of prep work behind the scenes, " she explained.
According to the healthcare advocacy group KFF, more than 1.6 million million people in Kentucky are covered by Medicaid. More than half of the Commonwealth's Medicaid spending is for people who are elderly or those with disabilities.
Disclosure: Kentucky Voices for Health contributes to our fund for reporting on Budget Policy & Priorities, Children's Issues, Consumer Issues, Health Issues. If you would like to help support news in the public interest,
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