Saturday, August 13, 2022

Play

Voting-rights groups sue AZ to block 'Election Security' Bills; U.S House vote expected today on the new Inflation Reduction Act; the Attorney General moves to release details on search of Trump s home.

Play

Local election officials detail how election misinformation is fueling threats; Media outlets ask a court to unseal the search warrant of Donald Trump's home; and the CDC changes its approach to COVID-19.

Play

Infrastructure funding is on its way, ranchers anticipate money from the Inflation Reduction Act, and rural America is becoming more diverse, but you wouldn't know it by looking at the leadership.

MO Scientists to Study Children with Hemophilia

Play

Monday, May 8, 2017   

KANSAS CITY, Mo. -- About 20,000 people in the U.S. are living with hemophilia, a rare, inherited blood disorder. And a study of the disease is under way at Children's Mercy hospital.

Hemophilia causes a person's blood not to clot, and that can lead to severe bleeding, joint damage, bleeding into the brain and even death. It's an inherited disease that affects people from all racial and ethnic groups, and strikes 1-in-5,000 boys.

Dr. Shannon Carpenter, director of the Hemophilia Treatment Center at Children's Mercy, said some patients develop an antibody, also called an inhibitor, and that means the medicines used to treat hemophilia won't work. Scientists are trying to figure out why.

"We don't understand all of the reasons why people might get an inhibitor,” Carpenter said. “And we don't really understand how, even if we know someone is more at risk, we don't really know how to keep them from getting an inhibitor."

Children with a family history, along with African American and Hispanic children, are more likely to develop the inhibitor. The study is just getting under way and will take place over the next six years.

Carpenter said other studies have been done outside the U.S. but this one takes an in-depth look at children who have been diagnosed with the illness.

"We haven't focused on specifically untreated young children in the way that we plan on focusing on here,” she said. "We're getting lots of information about their genetics, looking at what kind of medication they're using, how often they're using it, what situation they're using it in."

For the first phase of the study, Children's Mercy is collaborating with Rady Children's Hospital in San Diego and BloodCenter of Wisconsin, along with doctors who have studied the disease extensively in the Netherlands. Then it will move on to all 140 hemophilia treatment centers in the U.S.

More information on hemophilia is available at cdc.gov.


get more stories like this via email

Since the 2020 election, at least 19 states have passed 34 laws restrict­ing access to voting, according to the Brennan Center For Justice. (Orlowiski Designs/Adobe Stock)

Social Issues

Voting-rights advocates are suing the state of Arizona over new regulations they say make it harder for some people to register and would block thousa…


Social Issues

New Hampshire ranks second in the country on measures of child well-being, according to the new 2022 Kids Count Data Book from the Annie E. Casey …

Social Issues

Massachusetts ranks first in the nation for children's well-being, according to the 2022 Kids Count Data Book from the Annie E. Casey Foundation…


While there are continued disparities, an annual report says Minnesota has seen progress in elevating kids out of poverty, with 12% of children falling into that category. (Adobe Stock)

Social Issues

Minnesota once again gets a high ranking among states for child well-being, but an annual report says the state's disparities remain a challenge…

Social Issues

Some measurements of children's well-being show warning signs in Iowa in the area of education. The numbers contrast with Iowa's overall ranking in a …

Pictured in the center is Francine "Fran" Pace, one of 11 graduates of this summer's Youth Leadership Academy for Iowans with disabilities. (Photo courtesy of DD Council).

Health and Wellness

Nearly a dozen Iowa youths with disabilities are taking newly developed leadership skills out into the world. A summer academy wrapped up this month…

Environment

A coalition of community organizations teamed up in Oregon to force a chronic polluter out of business, and bring environmental justice to a nearby …

Social Issues

As parts of Southern California suffer with triple-digit temperatures, state lawmakers are set to vote today on two bills to study and mitigate heat …

 

Phone: 303.448.9105 Toll Free: 888.891.9416 Fax: 208.247.1830 Your trusted member- and audience-supported news source since 1996 Copyright © 2021