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Some South Dakota farmers are unhappy with industrial ag getting conservation funds; Texas judge allows abortion in Cox case; Native tribes express concern over Nevada's clean energy projects.

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The Colorado Supreme Court weighs barring Trump from office, Georgia Republicans may be defying a federal judge with a Congressional map splitting a Black majority district and fake electors in Wisconsin finally agree Biden won there in 2020.

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Texas welcomes more visitors near Big Bend but locals worry the water won't last, those dependent on Colorado's Dolores River fear the same but have found common ground solutions, and a new film highlights historical healthcare challenges in rural Appalachia.

KC Hospital Becomes Treatment Hub for Emerging Childhood Disease

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Tuesday, July 25, 2017   

KANSAS CITY, Mo. – A relatively common but under-diagnosed childhood disease is getting special attention at a unique clinic in Kansas City.

Children's Mercy Hospital's Super Q Express clinic is named for the disease known as "22Q" which is seen at birth in the form of everything from heart defects to cleft palates and immune-system problems.

Super Q Express puts an array of specialists and even mental-health professionals in one place so parents of affected children have a one-stop hub to address their child's needs.

Clinic director Dr. Max Feldt says you probably haven't heard of 22Q but it occurs at nearly the same rate as Down Syndrome.

"Twenty-two-Q means that there's a change on the 22nd chromosome, and either there's a deletion - meaning that part of that genetic material is missing - or there's an extra piece," he explains.

Feldt says the Super Q Express clinic is now seeing patients from Missouri, Iowa, Kansas, Nebraska, Arkansas, Oklahoma, Texas and even California.

Feldt says no parent likes to hear that their child is sick, but he often finds that a definitive diagnosis can provide enormous relief. Plus, he notes, the all-encompassing services they're able to provide help families strategically and efficiently fight the disease.

Feldt says Super Q Express brings cardiology, immunology and a variety of other specialists together in a place where a medical coordinator can plan approaches with families. That, he says, makes a big impact.

"We can now start to be very proactive in terms of making sure that we're aware or screening for possible things that might happen in the near future or even in the distant future," says Feldt.

Because 22Q creates so many different challenges, it's often misdiagnosed until genetic testing is done.


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