skip to main content

Monday, May 29, 2023

play newscast audioPlay

Advocates call for a climate peace clause in U.S.-E.U. trade talks, negotiations yield a tentative debt ceiling deal, an Idaho case unravels federal water protections, and a wet spring eases Iowa's drought.

play newscast audioPlay

Gold Star families gather to remember loved ones on Memorial Day, House Speaker Kevin McCarthy says the House will vote on a debt ceiling bill this week and America's mayors lay out their strategies for summertime public safety.

play newscast audioPlay

The growing number of "maternity care deserts" makes having a baby increasingly dangerous for rural Americans, a Colorado project is connecting neighbor to neighbor in an effort to help those suffering with mental health issues, and a school district in Maine is using teletherapy to tackle a similar challenge.

KC Hospital Becomes Treatment Hub for Emerging Childhood Disease

play audio
Play

Tuesday, July 25, 2017   

KANSAS CITY, Mo. – A relatively common but under-diagnosed childhood disease is getting special attention at a unique clinic in Kansas City.

Children's Mercy Hospital's Super Q Express clinic is named for the disease known as "22Q" which is seen at birth in the form of everything from heart defects to cleft palates and immune-system problems.

Super Q Express puts an array of specialists and even mental-health professionals in one place so parents of affected children have a one-stop hub to address their child's needs.

Clinic director Dr. Max Feldt says you probably haven't heard of 22Q but it occurs at nearly the same rate as Down Syndrome.

"Twenty-two-Q means that there's a change on the 22nd chromosome, and either there's a deletion - meaning that part of that genetic material is missing - or there's an extra piece," he explains.

Feldt says the Super Q Express clinic is now seeing patients from Missouri, Iowa, Kansas, Nebraska, Arkansas, Oklahoma, Texas and even California.

Feldt says no parent likes to hear that their child is sick, but he often finds that a definitive diagnosis can provide enormous relief. Plus, he notes, the all-encompassing services they're able to provide help families strategically and efficiently fight the disease.

Feldt says Super Q Express brings cardiology, immunology and a variety of other specialists together in a place where a medical coordinator can plan approaches with families. That, he says, makes a big impact.

"We can now start to be very proactive in terms of making sure that we're aware or screening for possible things that might happen in the near future or even in the distant future," says Feldt.

Because 22Q creates so many different challenges, it's often misdiagnosed until genetic testing is done.


get more stories like this via email

A new ruling from the U.S. Supreme Court means ephemeral streams, such as this one in the mountains east of San Diego, are no longer protected by the Waters of the United States rule. (Chris Hunkeler/Flickr)

Environment

play sound

The U.S. Supreme Court has gutted federal protections for much of the country's wetlands. The court found that the Waters of the United States rule…


Environment

play sound

Environmental advocates say the U.S. Supreme Court has dealt a major blow to the Clean Water Act and to Maine's ability to protect some of its most …

Environment

play sound

A U.S. Supreme Court case that began in Idaho has weakened protections across the nation under the Clean Water Act. The justices on Thursday handed …


As workers try to move forward from the pandemic's aftereffects, labor leaders, including the Minnesota Association of Professional Employees, say protections and stronger benefits should help get their careers back on track. (Adobe Stock)

Social Issues

play sound

Minnesota legislators adopted a lot of major policies in this year's session, including actions to support workers in many different fields. State …

Environment

play sound

The nonprofit Trust for Public Land has published its annual ParkScore rankings, and some area cities are high on the list. Washington, D.C.…

The "Water Year" typically starts on Oct. 1, and represents the time when new water Iowa receives goes to help the next year's growing season. (Adobe Stock)

Environment

play sound

For the first time in nearly three years, the widespread drought that has had Iowa in its grip is predicted to end. The latest drought outlook says …

Health and Wellness

play sound

As the opioid epidemic continues to take its toll, a Virginia group is working to keep people safe. The Virginia Harm Reduction Coalition in Roanoke …

Social Issues

play sound

A new report outlined the importance of student debt relief to workers in New York and across the country. An American Federation of Teachers …

 

Phone: 303.448.9105 Toll Free: 888.891.9416 Fax: 208.247.1830 Your trusted member- and audience-supported news source since 1996 Copyright © 2021