KANSAS CITY, Mo. — Kansas City is on its way to becoming an international hub in genomic research and the fight against pediatric diseases.

Two major endowments totaling $150 million last month are being used to lure top-notch pediatric research scientists to study and combat rare diseases in children.

Dr. Tomi Pastinen is director of the Center for Pediatric Genomic Medicine. He led a genomic research lab in Montreal for 15 years before taking a position at Children's Mercy last year. Pastinen says the availability to help patients so close to him drew his interest.

"And the whole team taking care of patients which really allows us to rapidly deploy genomic tools in more or less a bedside manner," he says.

Children's Mercy already features the first genome centers in a children's hospital. The genome research aims toward finding solutions for complex issues in kids regarding DNA sequencing and analysis, including heart disease, diabetes and cancer.

The genome research facility looks at ways to understand and treat diseases in infants, as well as fully grasp diseases such as diabetes that are caused by genetics and environmental factors. Dr. Pastinen says their work will increase the amount of genomic research done at the hospital by more than two-fold.

"It's big news in terms of getting the infrastructure to allow us to grow in directions in genomic medicine and other areas of pediatric research, that we think we should be going and building up the new research focus of Children's Mercy," he explains.

The two $75 million donations were made by the Hall Family Foundation and Sunderland Foundation. The new research institute - located in downtown Kansas City - will offer more than five times the amount of space than the current facility, standing nine stories tall with roughly 375,000 square feet.


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A bill in the Pennsylvania General Assembly would amend the state Constitution to allow more adult victims of childhood sexual abuse to sue their abusers.

Senate Bill 1 would open a two-year retroactive window for lawsuits by victims of sexual abuse who were otherwise time-barred from bringing claims.

Terry Clark president and CEO of the Pennsylvania Council of Children, Youth and Family Services, said in 2019, the state extended the civil statute of limitations for child sexual-abuse victims to file suit, from age 30 to age 55. Clark pointed out the bill would also allow legal action against organizations the Council works with to support victims.

"And this really is where our concern is, because it relates to a person being able to sue institutions," Clark explained. "Those institutions aren't just folks like the Catholic churches or Boy Scouts of America. It's also foster-care providers, adoption providers, residential treatment providers."

The bill, sponsored by Sen. Daniel Laughlin R-Erie, also includes new, stricter voter ID requirements. Clark noted the proposed amendments would have to pass in two consecutive legislative sessions, before they would be put on the ballot for voters statewide.

Clark added there are concerns opening a two-year window for sexual-abuse claims, referred to as the "look-back time," may prompt some fraudulent claims. The Council recommended legislators consider a shorter time window of one year instead of two.

"But also establishing parameters around potential defendants," Clark urged. "That would mean including some type of language that limits the scope to who the perpetrator is; the individual causing the harm being more the individual, versus being the institution itself."

Clark emphasized his group would also back requiring some level of fact-finding before a claim is filed, including evaluation by a licensed mental-health professional certifying there is a reasonable basis to believe sexual abuse occurred.

"One of the other things is really looking at creating a victim's compensation fund," Clark noted. "That's a fund that would really help victims and their families through that time. That's the emotional, physical, and traumatic time, it helps ease the financial impact of the services that they might need to heal."

Other suggestions would be mandatory, structured settlements with specific dollar amounts, and including language in the bill to cap attorney fees, to ensure most of the money in a sexual-abuse settlement goes to meeting the needs of the survivor.

Many of California's 13.5 million children and teens have not bounced back after the pandemic, especially children of color, according to the just-released 2023 California County Scorecard of Children's Well-Being. The report showcases data from all 58 counties and shows wide disparities in indicators of health, education and more.

Kelly Hardy, senior managing director of health and research at Children Now, said anti-poverty measures during COVID helped a lot, but they were just temporary.

"Thirty-eight percent are in families making less than two times the poverty level, which is around $60,000 a year for a family of four," she said, "so, that's a pretty low bar."

The data show the state has more than 170,000 homeless students, and that the shortage of state-funded child care continues. The report found that in 2017, 2019 and 2021, only one in four working families had access to a space in a licensed child-care facility.

Susannah Kniffen, Children Now's senior managing director of child welfare and government relations, said kids in foster care had alarmingly low scores for access to healthcare and academic achievement.

"These kids are facing distinct challenges that other students aren't," she said, "and they need a very targeted approach to their education if we're ever going to change the numbers, which are fairly dismal."

Vince Stewart, vice president for policy and programs at Children Now, said in terms of education, kids appear to be losing ground as they get older.

"Forty-two percent of third graders met or exceeded standards and reading, 31% of fifth graders met or exceeded standards in science, in 29% of eighth graders met or exceeded standards in math," he said. "And then 11th graders, it's only 27% who are deemed ready for college-level math."

The report does show some bright spots. California children have high rates of health insurance and a high proportion of babies are born at normal birth weight.

Dental hygienists are trying to raise awareness about the importance of oral hygiene, noting dental pain is one of the most common reasons for school absenteeism among children.

Studies show children with dental pain are three times more likely to miss school. In addition, a child or teenager with noticeable dental disorders, such as blackened teeth or tooth loss, can take a negative toll on their self-esteem.

Betty A. Kabel, director of dental outreach for North Florida Medical Centers, sees it all too often, noting for too long, people have treated oral hygiene as a secondary issue instead of a primary concern.

"If a child has a broken arm, they would not be walking around with a broken arm," Kabel pointed out. "Your tooth, if it's an infection, or it's abscess, it's broken, there is a problem, so it's not OK for a kid to be in tooth pain."

Student health is among the top causes for chronic absenteeism, which includes dental pain, vision problems or mental health, according to the Healthy Schools Campaign.

Kabel argued there needs to be more awareness and expanded access for dental care, especially in rural areas.

Kabel stated she hears first-hand from the children she treats who feel embarrassed, and find it difficult to concentrate due to severe pain. She warned there are worse outcomes for untreated dental problems.

"Children die from tooth infections," Kabel stressed. "The infection is right there next to their brain, it's in their bloodstream, so it's a matter of life and death, when you're walking around with an infection in your mouth. "

Florida is among the top states in the nation with individuals living in Dental Health Professional Shortage Areas, and Kabel noted her organization tries to fill the gaps by working with parents and caregivers to try to treat kids who end up in their school nurse's office with severe pain.

She added there are not a lot of providers who see children, so they do their best to get kids into the ones who do provide care to kids.