NEW YORK -- A national group has created new online tools to help people diagnosed with dementia determine the kinds of care they will want, including end-of-life care.
Today is World Alzheimer's Day, and research indicates a rising wave of dementia in the wake of the COVID pandemic.
Without an advance directive on care, doctors are likely to prolong a patient's life for as long as possible.
Kim Callinan, president and CEO of the group Compassion and Choices, said polling data shows most people would prefer a natural death rather than living for years in a condition they consider worse than dying.
The group has released videos and online tools to help make these care wishes known.
"It allows a person to reclaim their voice and identify the point at which they would want their caregivers and their medical team to support them in allowing a natural death to take place," Callinan said.
Dementia affects one out of three dying seniors in the United States.
Callinan said the tools use a series of questions to give a person the chance to think about and decide for themselves what types of medical care they want when they are no longer able to make their wishes known.
"It will tell their caregiver whether or not they would want to continue with aggressive treatments, whether they would want other diseases to end their suffering, or whether they would want all available treatment."
She noted the tools allow users to create a Dementia Healthcare Directive that empowers health-care proxies to implement informed decisions on the patient's behalf.
Callinan added the tool also is important for the adult children of seniors who may be faced with making those decisions. And they may want to encourage their parents to use the tools, as she did with her own parents.
"I want to be able to honor and respect what you want," Callinan said. "Would you take the time to go through this tool with me? Because it will help me know that I am showing love for you, exactly how you want me to show it."
Research shows New York is one of the ten jurisdictions in the United States with the highest rates of Alzheimer's disease.
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Alzheimer's disease is one of the leading causes of death in North Dakota, prompting state officials to launch an online dashboard, where the public can learn more about the numbers and resources.
Data compiled from state vital records showed in 2020, more than 500 North Dakotans died from Alzheimer's, up about 100 from 2016.
Melissa Kainz, community clinical coordinator for the North Dakota Department of Health, said it is not surprising to see those numbers gradually increase with an aging population.
"People are living longer," Kainz pointed out. "With that longer life span, these rates are consistently found in the older population, and we just would like to have that awareness piece out there."
With the dashboard, she explained loved ones can sort through links to find out information ranging from getting a diagnosis to becoming a caregiver. The site also includes projections on future cases, giving policymakers a tool in decision-making surrounding public health.
Emerging research has probed methods of detecting the disease before symptoms start to show. In the meantime, Kainz noted they know quickly following up after the signs first appear is key.
"Research shows that the earlier people are diagnosed with Alzheimer's disease or dementia, the greater chance they have or the greater quality of life or living they have for a longer period of time," Kainz stressed.
Some common symptoms include increased memory loss and confusion, as well as an inability to learn new things. As for projections, the dashboard showed annual Medicare claims for the disease should rise from their current average of around 750 to nearly 1,000 by the year 2035.
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May is Wildfire Awareness Month, and state officials are encouraging Coloradans to get up to speed on prevention and emergency-exit strategies if evacuation notices are issued.
Rocco Snart, the planning branch chief with the Colorado Division of Fire Prevention and Control, said it's never too early to prepare.
Make a list of all the things you need to take with you, including a week's worth of prescription medicines. Next, find a place you can go, and make plans to get there.
He said you don't want to be in a rush when you leave your house.
"You want to try to make that on your own terms, so that you can make sure that you've collected everything that you need," said Snart. "If you need a walker, and you need to get it in a vehicle, or if you need to arrange to get a ride to come and pick you up, the earlier you can work on those things, the better."
Snart said make sure your insurance policies and personal identification documents are up to date, and make copies for your emergency travel kit - which should also include N95 masks to protect yourself from smoke inhalation.
A complete checklist for disaster preparedness is available at Ready.gov.
The group Wildfire Partners works with Mile High Youth Corps in Denver to provide wildfire-mitigation services at no cost to older residents.
Snart said even small steps can help. Make sure trees and plants are well hydrated, and if you live near open spaces, reduce vegetation to create a buffer around your house.
"Make sure that any deck materials are taken care of and not splintered," said Snart. "I mean, a deck with splintered wood and wood that's breaking down looks like a campfire for embers, right?"
Climate change is projected to create longer wildfire seasons in years ahead, with fires becoming more frequent and intense. Snart said this new reality can lead to a sense of denial, but he encourages everyone to take time to be prepared.
"That's not going to happen in my neighborhood, that's not going to happen in my subdivision," said Snart. "And the reality of it is, it can happen anywhere. In the Front Range, in the mountains, wherever there is fuel and homes next to one another."
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An official plan to expand broadband in Texas is due out June 15, after state officials traveled near and far to collect public comments on internet access and affordability.
Tim Morstad, associate state director for AARP Texas, said the pandemic highlighted equal access to high-speed internet is critical and no longer a "nice-to-have" luxury.
"We've got to get access to high-speed internet, and we've got to make sure it's affordable, and we've got to make sure people have the skills to utilize it," Morstad outlined. "I picture it as a three-legged stool to make sure that we can really unlock the potential for older Texans."
Texas lawmakers passed legislation last year to create the Texas Broadband Development Office. Currently, the state has access to $500 million in federal money through COVID-19-related grants with more money promised through the federal infrastructure law House Bill 3684 11/15/2021.
The geographic size of Texas is a challenge for connecting people to reliable internet, especially in rural areas, but Morstad expects Texans will appreciate the benefits when the work is finished.
"For older Texans, it has the ability to unlock things like telehealth," Morstad explained. "It will also allow older Texans to stay connected, whether that's with friends or families or caregivers."
Morstad added half of those who belong to AARP Texas are between the ages of 50 and 64 and still very active in the workplace. It means if they are looking for a job, they need affordable, high-speed internet to find out what's out there and how to apply.
"And some of them, you can work from home, but only if you're connected," Morstad pointed out. "So we really want to see high-speed internet pushed out there further across our state, so these opportunities are available to older Texans."
Later this year, the Texas broadband office expects to issue a map of the state, property by property, to show where expansion is needed.
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