Virginia's 2022 General Assembly session begins tomorrow, and groups supporting older Americans are pushing lawmakers to pass legislation making nursing homes safer and lowers prescription drug prices.
Even before the pandemic, Virginia's nursing homes had serious staffing shortages, which led patients to suffer injuries such as bedsores and issues with toileting care.
Natalie Snider, associate state director of advocacy for AARP Virginia, said the COVID-19 crisis expanded the problem, and she expressed disappointment legislation did not pass last year during the pandemic's peak.
"There are 38 other states that have some sort of minimum staffing standard in place," Snider pointed out. "And Virginia does not have any. And I think this will be the 18th or 19th year that there has been legislation put forth in the General Assembly, and it's time for them to take action."
Nursing Home Abuse Advocates, a nonprofit group tracking unsafe nursing homes, currently has more than 115 Virginia nursing homes on its watchlist.
An AARP survey of Virginia voters showed an overwhelming majority support increasing wages and training for nursing-home staff. Snider reported more than 70% want to establish minimum hourly staffing thresholds and 85% support required infection-control training.
"It was really obvious across the board that people do want these standards in place," Snider contended. "Because we want to know that in a nursing home, our loved ones are getting quality care."
Snider noted her group and other health-care advocates are also urging lawmakers to approve a proposed prescription-drug affordability board. Virginia's neighbor, Maryland, has one, which evaluates drug prices and sets limits on how much certain payers will pay.
"I want to be clear that it's not price setting," Snider emphasized. "We're not telling drug companies that they're allowed to charge for a drug. We're just saying, within this state, this is what payers are allowed to pay."
She added the skyrocketing cost of prescription drugs led Maryland to establish the first drug-pricing advisory board in the nation in 2019. Maine and Colorado have approved similar boards since then.
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More people are providing care at home for aging family members or those with disabilities - and a new study says they face mounting financial and emotional challenges in the process.
The report from AARP and the National Alliance for Caregiving finds more than 63 million Americans are now family caregivers, an increase of 20 million from 10 years ago. Nearly half of those surveyed face major financial hardships such as debt, lost income or food insecurity.
Bandana Shrestha, AARP Oregon's state director, said the work is getting more complex, adding to the stress.
"People are living with many chronic diseases, which may mean that people are managing multiple medications, they may have other medical demands on them," she said, "and a lot of this is being taken care of by family caregivers."
Oregon's 470,000 family caregivers, whom Shrestha calls the "backbone of the state's long-term care system," receive better support than most states. She cited policies such as paid family leave and programs such as Oregon Project Independence, which provides limited in-home services.
Alma Valencia is part of the "sandwich generation," caring for both her children and her aging mother with dementia. Valencia said she left a fashion career and its financial stability to care for her mother full time - and thinks one of the hardest parts is the isolation and stress.
"Caregiving isn't just a personal matter; it's a national issue," she said. "We need paid leave. We need financial relief. We need training. We need time to breathe."
Shrestha noted that on top of reducing paid work hours, family caregivers spend about $7,200 yearly on medical expenses. She said this is an area where lawmakers could help.
"They are forgoing a retirement savings, Social Security," she said, "so we have to do something in terms of offsetting those things."
She said AARP is supporting a bill in Congress focused on providing a tax credit for family caregivers, called the "Credit for Caring Act," which has more than 50 bipartisan co-sponsors.
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More seniors in Washington state are facing financial strain or even losing their homes and seven local organizations will expand support for them with help from new grants.
Funds from AARP Washington's Community Challenge grants support quick projects to create more age-friendly communities.
Lauren McGowan, executive director of Local Initiatives Support Corporation Puget Sound, one of the grant recipients, said the $15,000 will help seniors get property tax relief, for which many do not realize they qualify, or need help in applying.
"We want to make sure that families have access to those resources so that they can stay in their homes, age in their homes healthy and well, and then pass along their homes to the next generation," McGowan outlined.
The group expects to help more than 5,000 low- and moderate-income older adults in King, Snohomish and Pierce counties. McGowan noted the average household can save thousands of dollars a year if they qualify for property tax relief.
Marcelo Pratesi, development director for Habitat for Humanity in Whatcom County, another grant recipient, said they will use the money to help 10 low-income homeowners over age 50 with repairs they cannot afford or manage. The project will enhance accessibility, health and safety, enabling them to age in place.
Pratesi added in North Whatcom County, the need is high.
"They don't have anywhere else to go to," Pratesi pointed out. "For us to be able to walk in there and build a wheelchair ramp or put in grab bars, or make bathrooms more accessible in general, it's going to be really great."
The Community Challenge Grants awarded more than $63,000 for projects across Washington state this year, part of AARP's national community investment, which has awarded more than $4 million to hundreds of organizations.
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A former Wisconsin mayor said the new federal budget will only worsen the current aging crisis families like hers have already been facing.
Analysis from the Congressional Budget Office suggests President Trump's budget bill will trigger automatic cuts to Medicare due to an expected increase in the national deficit.
Judy Karofsky, a former mayor of Middleton, said it would affect hospice services and end-of-life programs already in need of greater funding. She explained when her mother was 99, the local hospice agency determined she was not dying soon enough and abruptly discontinued her services. She explained how it also triggered her eviction from the assisted living facility where she was at the time.
"This happens in this country," Karofsky emphasized. "My mother was 99-and-a-half when that was decided. We were on our own for a matter of months. She did die within the next six months, just before she turned 100. It was cruel!"
Karofsky stressed cuts to Medicare would rob many of the most vulnerable Americans, like her mother, of their right to a dignified death.
Hospice provides patients and families with pain relief, medical equipment, nursing care and spiritual support. Studies show hospice saves Medicare and families money by reducing overall health care spending. Karofsky said without it, families are faced with financial burdens few can bear.
"I thought before I was involved with my mom's hospice care, that hospice was a charity," Karofsky noted. "I understand now that every hour of help, every service, every product that's brought to a hospice recipient is reimbursed through Medicare and every hospice agency is beholden to Medicare."
The number of Americans aged 65 and older is expected to more than double over the next 40 years.
Karofsky argued the issue of underregulated assisted living facilities will worsen the current aging crisis across the country. In her book, "DisElderly Conduct, The Flawed Business of Assisted Living and Hospice," Karofsky recounted her mother's negative experience at six assisted living facilities in Wisconsin and called for action to address the ongoing crisis.
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