Grupos hispanos se están uniendo para alentar a las personas a tener conversaciones con sus seres queridos sobre el final de la vida antes de que ocurra una enfermedad o una tragedia.

La Fundación de la Herencia Hispana y el Consejo Nacional Hispano sobre Envejecimiento están haciendo equipo con la organización sin fines de lucro Compassion & Choices para que las personas hablen sobre la planificación para el final de la vida, el hospicio, el soporte vital, el poder notarial médico y la ayuda médica para morir.

La Dra. Yanira Cruz, quien encabeza el Consejo Nacional Hispano sobre Envejecimiento, dice que dejar que sus familiares y amigos conozcan sus deseos les permite sobrellevar el proceso de morir de una manera más pacífica y serena.

"Sin sentirnos culpables de como estábamos manejando la situación," dice Cruz. "Sabemos que al final hicimos exactamente lo que ella deseaba, lo que ella nos pidió."

Cruz recomienda que todos los adultos llenen una directiva anticipada, es decir, un documento legal que establece qué tratamientos quiere o no quiere, y quién puede tomar decisiones por usted si no puede hacerlo usted mismo. Ella señala que es menos probable que las y los latinos tengan directivas anticipadas a comparación de sus pares blancos.

Nueva York es el hogar de aproximadamente tres punto seis millones de latinos, es la cuarta población latina más grande del país.

Antonio Tijerino dirige la Fundación de la Herencia Hispana. Él dice que los latinos celebran a las personas que fallecieron el Día de los Muertos, pero muchos se sienten incómodos hablando de la muerte. Y, sin embargo, dice, es imprescindible, especialmente porque muchos en la comunidad han muerto por COVID, y los hispanos tienen menos probabilidades que otros grupos de tener seguro médico.

"Estamos lidiando con estos problemas del final de la vida a una escala más alta que otros," asegura Tijerino. "Y sin embargo, somos los que menos probabilidades tenemos de tener acceso a los recursos y la información para enfrentarlos."

Un kit de herramientas gratuito para la Guía de Decisiones al Final de la Vida está disponible en inglés y español en el sitio web de Compassion & Choices. Se trata de una guía para los lectores a través de pasos a considerar, creencias y valores personales, cualquier inquietud sobre la calidad de vida, los tipos de tratamientos para prolongar la vida que pueden desear o no, y cuáles son sus redes de apoyo.



get more stories like this via email

More people are providing care at home for aging family members or those with disabilities - and a new study says they face mounting financial and emotional challenges in the process.

The report from AARP and the National Alliance for Caregiving finds more than 63 million Americans are now family caregivers, an increase of 20 million from 10 years ago. Nearly half of those surveyed face major financial hardships such as debt, lost income or food insecurity.

Bandana Shrestha, AARP Oregon's state director, said the work is getting more complex, adding to the stress.

"People are living with many chronic diseases, which may mean that people are managing multiple medications, they may have other medical demands on them," she said, "and a lot of this is being taken care of by family caregivers."

Oregon's 470,000 family caregivers, whom Shrestha calls the "backbone of the state's long-term care system," receive better support than most states. She cited policies such as paid family leave and programs such as Oregon Project Independence, which provides limited in-home services.

Alma Valencia is part of the "sandwich generation," caring for both her children and her aging mother with dementia. Valencia said she left a fashion career and its financial stability to care for her mother full time - and thinks one of the hardest parts is the isolation and stress.

"Caregiving isn't just a personal matter; it's a national issue," she said. "We need paid leave. We need financial relief. We need training. We need time to breathe."

Shrestha noted that on top of reducing paid work hours, family caregivers spend about $7,200 yearly on medical expenses. She said this is an area where lawmakers could help.

"They are forgoing a retirement savings, Social Security," she said, "so we have to do something in terms of offsetting those things."

She said AARP is supporting a bill in Congress focused on providing a tax credit for family caregivers, called the "Credit for Caring Act," which has more than 50 bipartisan co-sponsors.

More seniors in Washington state are facing financial strain or even losing their homes and seven local organizations will expand support for them with help from new grants.

Funds from AARP Washington's Community Challenge grants support quick projects to create more age-friendly communities.

Lauren McGowan, executive director of Local Initiatives Support Corporation Puget Sound, one of the grant recipients, said the $15,000 will help seniors get property tax relief, for which many do not realize they qualify, or need help in applying.

"We want to make sure that families have access to those resources so that they can stay in their homes, age in their homes healthy and well, and then pass along their homes to the next generation," McGowan outlined.

The group expects to help more than 5,000 low- and moderate-income older adults in King, Snohomish and Pierce counties. McGowan noted the average household can save thousands of dollars a year if they qualify for property tax relief.

Marcelo Pratesi, development director for Habitat for Humanity in Whatcom County, another grant recipient, said they will use the money to help 10 low-income homeowners over age 50 with repairs they cannot afford or manage. The project will enhance accessibility, health and safety, enabling them to age in place.

Pratesi added in North Whatcom County, the need is high.

"They don't have anywhere else to go to," Pratesi pointed out. "For us to be able to walk in there and build a wheelchair ramp or put in grab bars, or make bathrooms more accessible in general, it's going to be really great."

The Community Challenge Grants awarded more than $63,000 for projects across Washington state this year, part of AARP's national community investment, which has awarded more than $4 million to hundreds of organizations.


get more stories like this via email

A former Wisconsin mayor said the new federal budget will only worsen the current aging crisis families like hers have already been facing.

Analysis from the Congressional Budget Office suggests President Trump's budget bill will trigger automatic cuts to Medicare due to an expected increase in the national deficit.

Judy Karofsky, a former mayor of Middleton, said it would affect hospice services and end-of-life programs already in need of greater funding. She explained when her mother was 99, the local hospice agency determined she was not dying soon enough and abruptly discontinued her services. She explained how it also triggered her eviction from the assisted living facility where she was at the time.

"This happens in this country," Karofsky emphasized. "My mother was 99-and-a-half when that was decided. We were on our own for a matter of months. She did die within the next six months, just before she turned 100. It was cruel!"

Karofsky stressed cuts to Medicare would rob many of the most vulnerable Americans, like her mother, of their right to a dignified death.

Hospice provides patients and families with pain relief, medical equipment, nursing care and spiritual support. Studies show hospice saves Medicare and families money by reducing overall health care spending. Karofsky said without it, families are faced with financial burdens few can bear.

"I thought before I was involved with my mom's hospice care, that hospice was a charity," Karofsky noted. "I understand now that every hour of help, every service, every product that's brought to a hospice recipient is reimbursed through Medicare and every hospice agency is beholden to Medicare."

The number of Americans aged 65 and older is expected to more than double over the next 40 years.

Karofsky argued the issue of underregulated assisted living facilities will worsen the current aging crisis across the country. In her book, "DisElderly Conduct, The Flawed Business of Assisted Living and Hospice," Karofsky recounted her mother's negative experience at six assisted living facilities in Wisconsin and called for action to address the ongoing crisis.


get more stories like this via email