North Dakota has a new survey online seeking information on how to better address the needs of people with autism.

Right now, state officials admit there are knowledge gaps which may be hindering the care people on the autism spectrum are getting. Parents, educators, law enforcement agencies, service providers and people with autism are being encouraged to fill out the survey, to see if they know what services the state offers or think there should be others.

Katherine Barchenger, autism coordinator for the North Dakota Department of Human Services, said the biggest knowledge gap is between health care providers and schools.

"Another gap is our law enforcement and how to handle a child that has autism and how to approach them, how to keep them calm," Barchenger explained. "Families are searching. They are trying to find areas that can best help them keep their child at home, and keep their child successful."

She added the state will use the information to educate the public, including the very people they are soliciting responses from, to find and implement ways to be more supportive of people on the autism spectrum. The survey is online and open through the end of the month.

Barchenger pointed out the needs of parents of autistic children are often overlooked, because the focus is typically on the demands of the child. She noted one of the most important factors in addressing the gap is to help parents get the rest and support they need.

"Because that is a full-time task, for kids who are very smart or sometimes are runners, so they get out of the house a lot," Barchenger emphasized. "You have to be on top of them constantly, so parents need a break."

She added the Autism Spectrum Disorder Task Force will make recommendations to the North Dakota Legislature when lawmakers convene in January.

Health advocates are promoting a package of bills this legislative session to make health care easier to get - and more affordable.

The Care 4 All California coalition, which includes more than 70 organizations, unveiled a set of 10 bills Wednesday in Sacramento.

Andrea Rivera, senior legislative advocate for the California Pan Ethnic Health Network, said grassroots support can make big things happen.

"Historically, communities of color, we're not invested in," Rivera pointed out. "Together, we are stronger, louder, and more powerful. Together, we cannot be ignored."

The coalition sees the bills as a series of steps on the way to achieving universal coverage by bringing down costs and removing barriers to care.

Right now, the Affordable Care Act bars undocumented people from purchasing health coverage through the Covered California marketplace.

Asm. Joaquin Arambula, D-Fresno, introduced a bill to ask the feds for a waiver.

"That's why I introduced a before this year, a bill that will end the unjust exclusion of our undocumented community from Covered California," Arambula explained. "We have to create a health care system that is more universal, affordable and equitable for all Californians."

Asm. Pilar Schiavo, D-Chatsworth, authored Assembly Bill 1208 to eliminate deductibles and lower copays for people on Covered California Silver plans. She wrote a second bill to allow Medi-Cal to offer additional services to new mothers.

"AB 608 would expand a mother's access to perinatal health workers who screen for postpartum depression, help with child nutrition, and provide a warm handoff to a host of other social services," Schiavo outlined.

Other bills in the package aim to eliminate surprise ambulance bills, require private health plans to cover things like wheelchairs when prescribed by a doctor, improve access to mental health care for youths, increase oversight of health care mergers, and improve financial transparency from medical groups.


get more stories like this via email

Colorectal cancer is second only to lung cancer in the number of lives it will take in Iowa this year. Now, doctors at the University of Iowa are studying ways to not only save lives, but reduce the number of colon cancer surgeries for patients.

Currently, colon cancer patients typically have to undergo surgery to have part of their colon removed or resected. Now, University of Iowa researchers are using immunotherapy to reduce surgeries and improve survival rates. If a patient's tumor biopsy has a certain genetic marker or mutation, they can receive targeted therapy instead of undergoing surgery.

Dr. Saima Sharif, Oncologist at the University of Iowa Holden Cancer Center, is directing a new treatment trial and said the number of people with the genetic mutation could be as high as 20%.

"So one in five patients who are getting their colonoscopy is a significant amount of patients," Sharif pointed out. "If we look in Iowa, we are expecting to have about 1,600 new cases diagnosed in 2023."

If doctors can detect the tumors early and treat them, they can reduce the number of people who need surgeries and, potentially, the number of deaths. Researchers began accepting patient applications for the clinical trial this week.

Cancer tricks the body's natural immune system into thinking abnormal cancer cells are normal, so the body will not attack them, allowing the cancer to grow. Immunotherapy turns the tables on cancer and uses the body's own cells and other drugs to attack it. Sharif noted immunotherapy makes the cancer fighting cells unrecognizable, which is what makes it successful.

"So what immunotherapy drugs do is it helps release the brakes off of the patient's immune system that the cancer has placed," Sharif outlined. "Preventing it to recognize cancer as abnormal, and this unleashes the patient's own immune system against the cancer to fight the cancer cells and kill them."

The trial will start with 25 patients. Sharif added they will grow the study depending on how many patients' tumors respond well to the treatment.

This March marks the 50th anniversary of National Nutrition Month.

Making sure children eat healthy can be tricky.

Chuck Larimer, an elementary school physical education teacher in Stayton, southeast of Salem, said his school has been part of the American Heart Association's Kids Heart Challenge for 23 years.

He observed students look forward to the program, but it's not just about getting active.

"There's more to it than just exercise, which is also important," Larimer explained. "It's that whole body wellness that's more of a focus"

The Kids Heart Challenge has been going on for nearly 45 years in elementary, middle and high schools across the country.

The American Heart Association said a few tips for parents can help introduce healthy foods to kids, even if they're picky eaters. Parents should include at least one item in meals everyone at the table likes. The group urged parents to shop and cook with their kids, and not get discouraged.

"I know at least with my boys' experience that taste buds do change and things that taste weird, or they might not like early on," Larimer noted. "That can change. And just try to continue to introduce different items."

Research has shown it can take at least 11 tries for a child to decide they like a new food, according to the American Heart Association. It also advised parents to offer fruits and vegetables when it is snack time to get them used to it.