Newscasts

PNS Daily Newscast - March 30, 2020 


Trump extends social distancing guidelines through April 30. The coronavirus is taking its toll on nonprofits; and scammers have already set their sights on your COVID-19 relief check.

2020Talks - March 30, 2020 


Campaigning from Joe Biden and Bernie Sanders has been virtual, and largely about the novel coronavirus. Sanders also spoke out about the Trump administration's Interior Department order to disestablish the Mashpee Wampanoag's reservation in Southern Massachusetts.

WI Parents Struggle With Prader-Willi Syndrome

May 26, 2009

Madison, WI - The refrigerator and kitchen cabinets become "household enemies" when parents learn they have a child with Prader-Willi Syndrome. The rare genetic disorder leads to a lifelong battle with food that manifests itself as an intense drive to eat and little ability to control that drive. May is Prader-Willi Syndrome Awareness Month.

Mary Lynn Larson, with the Prader-Willi Syndrome Association of Wisconsin (PWSA), is the mother of a 16-year-old with PWS. She says these children are prone to obesity along with other challenges, and monitoring their behavior is a full-time job.

"The child never feels full; there are behavior problems and learning issues. Many families have to lock all access to food - all the cabinets, and the refrigerator as they get older."

If access to food is not adequately supervised, she explains, the inability to feel satiated can lead to potentially life-threatening medical conditions associated with obesity. Larson says advances in medical technology can't do much for these children, but new PWS tests are a plus.

"We haven't found anything effective to help with weight loss. Fortunately, we've gotten much earlier diagnoses."

Caring for a PWS child can be very trying, adds Larson. While respite help is important, it is difficult to obtain because of these children's special needs. For more information about Prader-Willi Syndrome, reach the PWSA at 1-866-797-2947.

Glen Gardner, Public News Service - WI