NEW YORK - New York lawmakers are scrambling to meet this week's deadline to approve the state budget, but health and disability advocates say a change is needed to protect the health of thousands of New Yorkers. Heidi Siegfried, director of New Yorkers for Accessible Health Coverage, said the problem is that Gov. Cuomo's executive budget does away with New York's current requirement that insurers offer consumers a "rider" that allows them to get vital out-of-network health services.

"We're really confused about why the governor wants to remove this important consumer health protection," she said. "It doesn't save any money, and it really endangers people's lives."

The problem is that a given network of providers does not always include every needed service, such as specialized treatment for cancers and some rare conditions. Siegfried said Cuomo may be unaware of just how drastic the consequences of this change would be, and she hopes lawmakers will restore the rider.

The change Cuomo wants will not only affect New Yorkers in the years ahead, she warned, but it will also sever existing coverage for thousands, many of whom battle life-threatening illnesses.

"In addition, he has allowed the insurance companies to cancel the policies of 5,000 people with various illnesses and disabilities who are depending on being able to see out-of-network providers in order to survive," she said.

Without the state requirement, many local health groups are concerned that the out-of-network coverage could disappear for New Yorkers seeking coverage on the individual market, she explained.

"The Hemophilia Association, HIV organizations, those who serve people with lupus - all are calling upon the governor to not remove this important protection," she said.

While the state health care exchange will allow 1 million additional New Yorkers to get coverage, she urged the governor and the state to also ensure that the out-of-network option is available for those who need it for life-sustaining coverage.

The governor's press office had no comment.






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The Americans with Disabilities Act website has gotten a makeover, with updated navigation tools and easy-to-find answers to common questions on everything from service animals to accessible polling places.

The federal government said it wants to better empower people to understand their and others' rights, and equip workplaces, local governments and other institutions to comply with the law.

The new website also employs speech software to make it even more accessible.

Connor McGarvey, chief operating officer of Easterseals Northern Ohio, said the growing use of assistive technology is improving the lives of people living with disabilities, and explained devices are becoming increasingly sophisticated, including using facial recognition tools.

"The promise of technology is definitely something that has really opened up the lives of individuals with disabilities," McGarvey pointed out. "If they were to look at their caregiver, or their parents, it will tell them who they're looking at. That's huge."

The latest census data show an estimated 10% of Ohioans under the age of 65 live with some type of disability. The number of people worldwide needing assistive technology is likely to reach more than three billion by 2050, largely driven by aging populations.

Visit the new site at ada.gov or call the Justice Department's toll-free ADA information line at 1-800-514-0301.

McGarvey added numerous disability services operated by county boards in Ohio, funded by Medicaid, are possible through ADA legislation.

"If you are receiving job coaching, and community outreach and assistance finding a vocation, in the community, all of that is funded through Medicaid," McGarvey noted.

The Centers for Disease Control and Prevention reported Ohio spends $35 billion each year -- more than a third of the state health care budget -- on services for people living with disabilities.

Medicaid "Buy In" is considered a key health insurance tool for workers with disabilities. But according to a new report, the reach of these programs is languishing, potentially keeping these individuals out of the labor force. Minnesota is among the handful of states that have no income limits for a person with disabilities to maintain Medicaid coverage while working as much as they can.

But the Bipartisan Policy Center reported many states do, and they lack the information and resources to make this option widely available.

Lisa Harootunian, associate director, health program, Bipartisan Policy Center said they are out with recommendations to make eligibility easier, so these workers don't lose out on the community health services they need.

"By addressing challenges to the availability of Medicaid buy-in, people with disabilities would no longer have to choose between health coverage and employment," Harootunian said.

The report suggested providing more funding for states to do outreach work to boost awareness. Congress is urged to compel the Centers for Medicare & Medicaid Services to offer more guidance to states on how to optimize their "buy-in" programs.

Harootunian said lawmakers from both parties are behind the idea, but acknowledges other funding priorities might get in the way.

The Bureau of Labor Statistics said last year, 19% of people with disabilities were employed in the U-S. Harootunian said states should be motivated to not let them fall out of the working world or stay employed only on a limited basis.

"These programs - they help individuals contribute more to the state through taxes," she said.

She added there is a connection between expanded eligibility and lower Medicaid costs, noting Kansas' program saw per-person monthly expenditures decline by 41% between 2007 and 2011. She said the biggest decreases were in outpatient costs, noting that also translates to a better quality of life for program participants.

A new federal grant is giving schools in three Missouri counties and St. Louis City a fresh look at the challenges of students of color living with disabilities.

Missouri students of color with disabilities face harsher school disciplinary practices than their white peers, which can lead them into the juvenile justice system. Disrupting this path is the goal of the Missouri Juvenile Justice Association's SToPP Project, with a $275,000 grant from the Missouri Developmental Disabilities Council.

Miranda Fredrick, communications coordinator for the council, said its research, as well as the "lived experience" of some of its members, has demonstrated the disparity.

"When students experience harsh, disproportionate discipline happening in the school systems, it puts them on a path to interact with the criminal justice system," Fredrick explained. "That's what's known as that 'school-to-prison-pipeline,' and those suspensions can have long-term effects."

The grant will cover training in more constructive approaches to discipline, for teams of adults in Boone, Cape Girardeau and Greene counties, and St. Louis City.

An ACLU of Missouri study found Black students with disabilities are three times more likely to be suspended than their white peers.

Liz Ballard, racial ethnic disparities coordinator for the Missouri Juvenile Justice Association, said with the help of a "restorative justice" expert, they'll train teams in less punitive ways to discipline students. Ideally, each team will include a school representative, a law enforcement or school resource officer, a local juvenile office representative, and a community or family member, or a person with a developmental disability.

She added they will receive certification as trainers, so they can share what they learn.

"There's these things called healing circles, where they all sit down and work through the issue," Ballard pointed out. "There's just proven to be better outcomes and more, you know, case-by-case basis instead of cut-and-dry suspensions."

Students who are suspended or expelled, who may also be victims of poverty, abuse or neglect, are three times more likely to have an encounter with the juvenile justice system within a year. Ballard said their hope is the teams' success will change the trajectory and foster interest throughout the state.

"We will have four counties that have decreased their suspension and expulsion rate, treating kids fairly regardless of their developmental disabilities," Ballard noted. "And then, word gets out, and then it spreads, and people start reaching out to want additional training."