RICHMOND, Va. - With reforms underway in Virginia for children's mental health services, lawmakers and advocates want to hear from people dealing with the issues every day. Voices For Virginia's Children is hosting a community conversation Thursday in Charlottesville.
Executive director Margaret Nimmo Crowe says there will be a brief panel discussion that will include lawmakers looking to rewrite state policy. But she says most of the time will be for frank and open talk, including folks who know about the issue first-hand.
"Providers of mental health services, families who have children who experience mental health disorders tell us what is working and what is not working," says Nimmo Crowe. "What services are you able to get easily and what types of treatment are still needed?"
Nimmo Crowe says for the last five years they've been working on a long-term effort to improve access and funding for crisis services. She says lawmakers could make major changes to the system over the next few legislative sessions.
"We want to make sure those changes are informed," she says. "That policy makers are really hearing from the people on the ground, who either need the services or are trying to provide them."
She says much of the focus has been on adult mental health but it's important not to ignore children's needs, even if the issue is hard to talk about.
"We know that half of all mental illness begins before the age of 14, so if we're leaving the children's system out of the solution, we're really missing a big part of it," Nimmo Crowe says.
State Sen. Creigh Deeds will be on the panel. A year ago Deeds was violently attacked by his son, who was suffering from a mental illness. Since then Deeds has led much of the effort to reform Virginia's mental health services for children. Nimmo Crowe says it was crucial he be there.
"For us it was very critical to have him be part of this, not only to share, but also to hear what people are saying, because he is heading up the four-year legislative study commission."
Thursday's event is free and open to the public. It'll be held at the Jefferson School City Center in Charlottesville. Some snacks will be served, starting at 6 p.m.
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A U.S. Department of Justice investigation has found Kentucky is failing to provide access to community-based mental health services for people who need them, and instead relies too heavily on psychiatric hospitals.
The report says the state is potentially in violation of the Americans with Disabilities Act, or ADA.
Licensed Psychologist Sheila Shuster, who is part of the Advocacy Action Network, said years of budget cuts have reduced or eliminated the city's crisis centers - such as the Living Room, which opened its doors in 2018 and was shut down within a year due to lack of funding.
"Three to four hundred people a month coming in and using the services, and getting referrals," said Shuster. "And then boom, it's gone. So, that was May of 2019, and we don't have anything like it back in place."
The University of Louisville Hospital provides emergency psychiatric treatment to more than 2,200 adults with serious mental illness each year.
In a separate investigation last year, the Justice Department concluded the city and the Louisville Metro Police Department violated the ADA by subjecting people with mental illness to an unnecessary police response.
While the new report raises awareness about the needs of people living with mental illness, Shuster said it doesn't capture the full picture.
She cited recent changes the city has made, such its 911 call diversion program for mental health-related incidents, as well as families' view of the role of hospitalization.
"By and large, what I hear from the family members is not that their loved ones are being kept too long in the hospital, but that they're not being kept long enough," said Shuster, "which I think is what is leading to the revolving door."
Marcie Timmerman, executive director at Mental Health America of Kentucky, said the focus should be on early intervention and treatment, so folks don't end up being involved with the police.
"We would love to have more providers available," said Timmerman. "I'm not sure that pinpointing our psychiatric hospitals is really helpful."
She added that a mobile crisis response system, and Medicaid-funded housing and support programs, could help reduce the number of people who continue to cycle through hospitalization and the criminal legal system.
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Mental health experts have released a checklist for parents of students headed back to school in Montana.
Research shows kids who need services are often go without and substance abuse and mental health experts say half of students who are clinically depressed are not getting the mental health care they need.
Caitlin Hochul, vice president of public policy for the mental health advocacy organization Inseparable, said it is important services are available to students as they return to school.
"They help improve access to care and are really one of the most effective tools we have to help
improve children's mental health well-being," Hochul explained. "We are reaching kids where they spend most of their time, and that is in schools. "
The U.S. Department of Education said young people who get school-based services are six times more likely to complete treatment than those who get their services in community settings. A program at Montana State University has shown success in reducing the teen suicide rate by increasing mental health literacy among young students.
Hochul pointed out research showed increasing mental health literacy decreases symptoms of depression, and noted there are several steps to achieving the goal.
"One is making sure that kids understand what brain health is, what mental health is, similar to physical health education," Hochul outlined. "Then there's also training up staff and teachers, too, so they're understanding warning signs and can help with suicide prevention and substance use disorder prevention."
Hochul added regular mental health check-ins with kids, even if they are just informal, can help identify students who may need support.
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Between 2016 and 2023, more than 14,000 Missourians died from drug overdoses, making it the leading cause of death for adults aged 18-44 in the state.
Many drug-abuse prevention organizations across Missouri concur syringe service programs reduce the devastating effect abuse has on the community by providing clean, sterile needles to people who inject drugs, in exchange for used ones.
Marietta Hagan, substance abuse initiative project coordinator for CoxHealth, has worked in substance abuse prevention for eight years, primarily in Stone and Taney counties. She is a strong advocate for the syringe programs in Missouri and talked about the roadblock organizations such as hers face.
"Syringe access programs are not allowed and that is because Missouri drug-paraphernalia laws include sterile syringes as drug paraphernalia," Hagan explained. "Organizations are not allowed to hand them out to people and people who use drugs are not allowed to have them on them."
Studies showed the programs can decrease the incidence of hepatitis C and HIV infections by up to 50% among those who participate.
Research also found syringe service programs are economically beneficial, saving more than $75 million in lifetime HIV treatment costs with an annual investment of just $10 million. Hagan pointed out beyond providing sterile syringes, the programs offer vital resources, including safe drug use information and connections to treatment services for people who need help.
"What they found in global research studies is that people who utilize the syringe access programs, they are five times more likely to enter treatment and three times more likely to stop using drugs altogether," Hagan reported.
A legislative task force meets monthly at the Missouri state Capitol to discuss ways to reduce substance abuse in the state.
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