NEW YORK - New Yorkers can breathe a sigh of relief this month because they now have new protections from so-called surprise medical bills.

Many New Yorkers ended up with big bills for out-of-network care because of visits to the emergency room. Chuck Bell, programs director for Consumers Union, said a new law that took effect this month provides much-needed protections.

"Through this new law, our consumers in New York state will be able to avoid getting most surprise medical bills in the first place," he said, "and when they do get a surprise bill, this law will help them prevent protracted financial disputes."

On average, Bell said, about 2,000 New York consumers per year filed complaints about surprise medical bills.

Heidi Siegfried, project director for New Yorkers for Accessible Health Coverage, said the new law puts the responsibility on doctors and health networks to ensure that their network information is up to date, and protects consumers who may have relied on outdated information.

"The plan and the provider have to work out what the payment is going to be," she said, "and the patient does not have to pay anything other than the normal in-network charges if they are seeing an out-of-network provider and it wasn't their fault."

Bell said the law also protects New Yorkers from so-called drive-by doctors who were not in the initial game plan when patients underwent a procedure.

"A physician that you didn't expect sometimes shows up during the procedure, and afterwards you find you have a bill for visiting an out-of-network doctor," Bell said. "So the law provides for greatly expanded disclosure to consumers when out-of-network doctors are going to be involved in your care."

The new law also calls for an examination of health networks to make sure they actually provide all of the suitable care that New Yorkers need. If any network is found not to have a provider, New Yorkers will be able to go out of network without paying extra. Consumers still need to do their homework and see an in-network provider when they are available.


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Two bills making their way through the Colorado General Assembly would make it easier for people with disabilities to access college and other public institutions of higher learning.

House Bill 1107 would fund proven strategies for making college more universally accessible. Christiano Sosa, executive director of Arc of Colorado, said people with intellectual and developmental disabilities should be able to have the same experiences in college as everyone else.

"Participate in the rights of passage that many folks are afforded through the college experience," said Sosa, "living in the dorms, living on campus - and having the supports needed to do that effectively."

HB 1255 would create an advisory committee to outline ways to improve outcomes for students with disabilities attending state institutions. The measure cleared both chambers and awaits a signature by Gov. Jared Polis.

HB 1107 is still under consideration by the Appropriations Committee.

Sosa said the two measures combined would give Coloradans with disabilities real opportunities to escape poverty. It's estimated that 85% of individuals with intellectual disabilities are not working, or are under-employed, despite their willingness and ability to contribute to the workforce.

"And higher-ed historically has been that stepping stone to get the good jobs, so that folks do not need to live in poverty," said Sosa. "And that's why we're excited about this bill."

Sosa said when students with disabilities can access college, they go on to earn degrees and certificates in health care, advocacy, brewing studies and more.

Sosa said creating a more inclusive campus experience can also help more people reconsider the contributions the disability community is capable of making.

"And the more people we have in institutions of higher education," said Sosa, "I think we begin to break down some of these stigmas, and some of these stereotypes."

Missouri is launching an apprenticeship program to expand talent pipelines for Direct Support Professionals, who work with people with developmental disabilities.

The Show-Me State, like many others, is facing a serious direct-care workforce shortage. To answer the need, the program Missouri Talent Pathways was recently approved by the U.S. Department of Labor.

Duane Shumate, state coordinator of employment and community engagement in the developmental disabilities division of the Missouri Department of Mental Health, said it blends on-the-job mentoring with technical instruction, with participants eventually becoming Certified Direct Support Professionals.

"It tremendously impacts families and the individuals with a disability, that the families are having to take a lot of time off of work to provide care, because there's not an adequate workforce," Shumate explained. "It just creates a lot of risk and concern by having such a high turnover in this field currently."

In addition to reducing the impact of high turnover rates, Shumate pointed out another goal is to make sure apprentices are well-trained in national best practices to support people with developmental disabilities in achieving their own personal goals and outcomes.

Jessica Bax, director of the division, said Missouri is approaching the workforce shortage from multiple angles. She noted Gov. Mike Parson supports increasing the reimbursement rates for direct-care providers, along with the apprenticeships and other talent-pipeline programs.

"One of the major benefits of having an apprenticeship program as a talent pipeline is the proven benefits of the tenure," Bax emphasized. "Individuals tend to stay in the employment, and one of the biggest impacts on the success of the individuals that we serve is consistency."

Data from the Department of Labor shows three years after completing an apprenticeship, folks are often still employed at a nearly 90% retention rate.

Bax added the program is the first of its kind, and other states are looking to Missouri to replicate the model.

As Developmental Disabilities Awareness Month comes to a close, advocates say the work to secure equal rights and independence for people with disabilities continues.

The Missouri Developmental Disabilities Council (MODDC) is among those working to spotlight the issues that matter most to the communities they serve.

Animesh Shah, chair of the Council, said it is important for everyone to be aware of the challenges people with developmental disabilities face, from issues around independence and guardianship and workforce training to criminal justice and first-responder disability awareness.

"The idea of accessing a variety of services that others take for granted. For example, government services or accessing a restaurant or accessing a website," Shah outlined. "There are also a variety of issues in the education system and in the criminal-justice system that we hope that with the advocacy we'll be able to do much better than what we are able to do today."

One in three Missourians has a disability. Shah pointed out many resources are available in Missouri and across the country to help people thrive if they know how to access them.

Shah entered disability advocacy after his daughter was diagnosed with Rett Syndrome. He struggled at first to navigate disability-support networks, but noted groups such as MODDC are there to help individuals and their families or caregivers access resources.

"My goal is that eventually we reach to a level where every individual is self-aware of their capabilities, their rights," Shah remarked. "And people around that individual are working to uplift people with disabilities and not just create roadblocks."

Shah added MODDC also is working to support a training program for individuals with developmental disabilities to become self-advocates. Developmental Disabilities Month was started in 1987 and has been recognized as a time to support individuals with disabilities ever since.