NEW YORK - None of us wants to ponder what life would be like if we lost a limb; but a new change in policy for the New York State of Health marketplace just made life more manageable for thousands.

At issue was how often and how many prosthetic limbs could be replaced for New Yorkers who rely on what is commonly known as "Obamacare." Heidi Siegfried, project director for New Yorkers for Accessible Health Coverage, said New Yorkers now will be covered if they outgrow prosthetic limbs or if the limbs simply wear out over time.

"So, this means that people will not have to pay out of pocket anywhere from $5,000 to $80,000 to replace a limb," she said, "which they do need replacement, like, every three to five years."

Siegfried said New York lawmakers also are debating a long-term fix this session that would make coverage for these prosthetic devices a matter of law in New York.

Solomon Wolde is a Type 1 diabetic from the Bronx who has two prosthetic devices from leg amputations. The loss of a kidney qualified him for Medicaid and, as a result, his limb replacements are covered. Still, he said he is concerned about other uninsured fellow New Yorkers who need state lawmakers to take action.

"If you don't have insurance, that means I couldn't leave my house. I couldn't go to the hospital or to visit a friend. I cannot do anything," he said. "That means it's very important for people who lose their limbs, so they have to fix the policy."

Siegfried said the replacement issue is important, considering the number of New Yorkers who lose a limb each year.

"In New York in 2012 there were hundreds of people getting upper-limb amputations and thousands of people that needed below-the-knee and above-the-knee amputations each year," she said, "and then, of course, they are going to need repair and replacement."

Siegfried said this is one positive sign as to how Obamacare rules can be improved to meet the changing needs and gaps in coverage for New Yorkers.


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TAMPA, Fla. -- Move United's USA Wheelchair Football League is expanding from four cities to nine, including Tampa, to give athletes with disabilities a chance to compete against the best adaptive football players in the country.

Ryan Lindstrom, a Navy veteran and quadriplegic athlete, was attending technical school when he was partially paralyzed in a car crash. His recovery sparked a love for nearly every kind of wheelchair athletics, including wheelchair rugby.

He's competed at the highest levels, just shy of making the USA Rugby Olympic team, so Lindstrom said he could not miss a chance to try out for the new wheelchair football league.

"It's one of those new sports that's just coming out for us, so it's exciting to be in on the ground floor and get out there and try something different," Lindstrom explained. "And then, you know, the tryouts, I felt they went pretty good, we had a good time, we had a pretty decent turnout."

The expansion is funded in part by the National Football League and the Bob Woodruff Foundation. An additional tryout session will be held July 31 in Tampa. Then, all nine teams will compete this fall in the league's inaugural season.

Lindstrom encouraged everyone, especially people in wheelchairs, to be more active, compete and see what the body is capable of. Among other things, he's played rugby, basketball, softball, tried hand-cycling and archery, and now, football.

"It's a new sport for everybody, so we're all still learning the rules, still learning how it's all working out," Lindstrom noted. "Like, I've been going over the rulebook myself, just sitting here at the house and stuff, because you've got to figure out what rules change, what rules stay the same, for football."

The USA Wheelchair Football League was founded in 2019 with four teams; Chicago, Kansas City, Los Angeles and Phoenix. The expansion added Tampa, Birmingham, Buffalo, Cleveland and New Orleans.

According to Move United, the grant that made the expansion possible will also help grow the sport through coaching education and learn-to-play clinics.

DES MOINES, Iowa -- Iowa's government has 180 boards and commissions, with many consisting of appointed members, but advocates fear most don't include people with disabilities.

An emerging effort aims to get more of these voices to serve on public panels.

The Iowa Developmental Disabilities Council recently adopted its latest five-year plan, which outlines the organization's top goals. A new focus is increasing participation in local and state boards and commissions.

Brooke Lovelace, executive director of the Iowa Developmental Disabilities Council, said there has not been much tracking of the issue. While there are some disability-specific panels, she contended the community should push to be part of decision-making in all areas.

"Boards and commissions that folks with disability should be applying for and serving on and something that's of interest to them," Lovelace outlined. "Whether that be economic development, the art council."

Lovelace argued not having influence can derail progress for the disability community, such as the recent election law adopted by Iowa. Among other things, it places restrictions on ballot drop boxes.

The council is having conversations with the governor's office, which appoints members, about increasing inclusion. There's also an online talent bank launched by the Human Rights Department in 2019, designed to encourage underserved Iowans to consider openings.

Monica Stone, deputy director of the Department, said the talent bank started shortly before the pandemic, so they have not been able to get a clear sense yet of how effective it is. But she added they are trying to increase awareness, noting a challenge is convincing those with disabilities they don't have to have a lengthy background in a specific area to be considered.

"I think sometimes people think you have to be something more special in order to put your name in the hat," Stone observed. "And the truth is, the people who serve on appointed boards and commissions are special because they choose to spend their time with public service, but they are everyday Iowans."

Similar efforts have occurred in states like Pennsylvania, which launched the Inclusive Leadership in Action project.

The Iowa Developmental Disabilities Council believes it is still an overlooked issue, and said the Hawkeye State could serve as a leader in gathering firm data while boosting recruitment.

DENVER - State health agencies are continuing to help people with disabilities who are physically unable to leave their homes to get COVID-19 vaccines, but work still is needed to reach some of the state's most vulnerable residents not already in Medicaid and other databases.

Bonnie Silva - director of the community living office with the Colorado Department of Health Care Policy and Financing - said so far, local vaccine providers have been tapped to serve almost 95% of the state's identified homebound population.

"Our goal was, 'How do we leverage local solutions where those are in place?' And so literally going county by county, region by region in Colorado so that we could understand what local solutions they had in place, and how as a state entity we could support them," said Silva.

Silva's team surveyed city and county health agencies, and identified fire departments, ambulance services and other providers who were able to bring vaccines directly to homes.

Vaccines are administered to homebound residents and anyone else nearby who wants one.

To reach people of color and traditionally harder-to-reach communities, Silva said regional agencies worked with trusted voices including church leaders and nonprofits including ARC of Colorado and the Colorado Cross Disability Coalition.

Silva said the biggest blind spot continues to be people who are homebound or experiencing homelessness and unable to travel, but are not connected to services. She encouraged all Coloradans to help her team reach those who want vaccines by calling their toll-free hotline, 1-877-COVAXCO, or 877-268-2926.

"Call on behalf of maybe a neighbor or friend," said Silva. "Just really make sure that every Coloradan who wants the vaccine is able to get one, and to hear that we have the infrastructure in place to make sure that they are, in fact, able to get it."

The Colorado Department of Health has issued a request for proposals, to find a single vendor to manage the work of getting health services to the state's homebound residents over the longer term. The contract is expected to be awarded by mid-July.