NEW YORK – As the U.S. Senate takes up its health care bill again this week, advocates for people with disabilities are concerned that cuts to Medicaid could limit benefits that provide critical care.

The Republican Party’s plan unveiled before the July 4 recess would cut Medicaid funds to New York by $7 billion over four years.

According to Heidi Siegfried, director of health policy at Center for Independence of the Disabled, New York, that could force the state to consider cutting benefits and services that Medicaid refers to as "optional."

"Rehab – like physical therapy, occupational and speech therapy – that is one New York cut five or six years ago,” she points out. “Prosthetic devices, durable medical equipment, like wheelchairs."

Though the number of Republican senators saying they won't support the GOP bill has grown, Siegfried fears the alternative that will emerge is likely to include deep cuts to Medicaid as well.

Services that make independent living possible also could be cut. Currently, Medicaid requires states to cover nursing home care, which Siegfried notes is very expensive and often contributes to declines in patient health.

"Services to keep people from going into a nursing home – like personal care aides and the services that you would need to continue to live in your own home – those are optional," she points out.

Siegfried explains that "mandatory" and "optional" are statutory terms that don't reflect medical necessity, but may influence decision-making.

Polling shows a majority of Republicans think of Medicaid as a "welfare program" rather than a health insurance program.

But Siegfried points out that Medicaid covers children as well as adults, and is especially critical for older New Yorkers and those with disabilities.

"We have to get people to understand that this is not just a program that serves low-income people, that it serves middle class people that have high needs," she stresses.





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TAMPA, Fla. -- Move United's USA Wheelchair Football League is expanding from four cities to nine, including Tampa, to give athletes with disabilities a chance to compete against the best adaptive football players in the country.

Ryan Lindstrom, a Navy veteran and quadriplegic athlete, was attending technical school when he was partially paralyzed in a car crash. His recovery sparked a love for nearly every kind of wheelchair athletics, including wheelchair rugby.

He's competed at the highest levels, just shy of making the USA Rugby Olympic team, so Lindstrom said he could not miss a chance to try out for the new wheelchair football league.

"It's one of those new sports that's just coming out for us, so it's exciting to be in on the ground floor and get out there and try something different," Lindstrom explained. "And then, you know, the tryouts, I felt they went pretty good, we had a good time, we had a pretty decent turnout."

The expansion is funded in part by the National Football League and the Bob Woodruff Foundation. An additional tryout session will be held July 31 in Tampa. Then, all nine teams will compete this fall in the league's inaugural season.

Lindstrom encouraged everyone, especially people in wheelchairs, to be more active, compete and see what the body is capable of. Among other things, he's played rugby, basketball, softball, tried hand-cycling and archery, and now, football.

"It's a new sport for everybody, so we're all still learning the rules, still learning how it's all working out," Lindstrom noted. "Like, I've been going over the rulebook myself, just sitting here at the house and stuff, because you've got to figure out what rules change, what rules stay the same, for football."

The USA Wheelchair Football League was founded in 2019 with four teams; Chicago, Kansas City, Los Angeles and Phoenix. The expansion added Tampa, Birmingham, Buffalo, Cleveland and New Orleans.

According to Move United, the grant that made the expansion possible will also help grow the sport through coaching education and learn-to-play clinics.

DES MOINES, Iowa -- Iowa's government has 180 boards and commissions, with many consisting of appointed members, but advocates fear most don't include people with disabilities.

An emerging effort aims to get more of these voices to serve on public panels.

The Iowa Developmental Disabilities Council recently adopted its latest five-year plan, which outlines the organization's top goals. A new focus is increasing participation in local and state boards and commissions.

Brooke Lovelace, executive director of the Iowa Developmental Disabilities Council, said there has not been much tracking of the issue. While there are some disability-specific panels, she contended the community should push to be part of decision-making in all areas.

"Boards and commissions that folks with disability should be applying for and serving on and something that's of interest to them," Lovelace outlined. "Whether that be economic development, the art council."

Lovelace argued not having influence can derail progress for the disability community, such as the recent election law adopted by Iowa. Among other things, it places restrictions on ballot drop boxes.

The council is having conversations with the governor's office, which appoints members, about increasing inclusion. There's also an online talent bank launched by the Human Rights Department in 2019, designed to encourage underserved Iowans to consider openings.

Monica Stone, deputy director of the Department, said the talent bank started shortly before the pandemic, so they have not been able to get a clear sense yet of how effective it is. But she added they are trying to increase awareness, noting a challenge is convincing those with disabilities they don't have to have a lengthy background in a specific area to be considered.

"I think sometimes people think you have to be something more special in order to put your name in the hat," Stone observed. "And the truth is, the people who serve on appointed boards and commissions are special because they choose to spend their time with public service, but they are everyday Iowans."

Similar efforts have occurred in states like Pennsylvania, which launched the Inclusive Leadership in Action project.

The Iowa Developmental Disabilities Council believes it is still an overlooked issue, and said the Hawkeye State could serve as a leader in gathering firm data while boosting recruitment.

DENVER - State health agencies are continuing to help people with disabilities who are physically unable to leave their homes to get COVID-19 vaccines, but work still is needed to reach some of the state's most vulnerable residents not already in Medicaid and other databases.

Bonnie Silva - director of the community living office with the Colorado Department of Health Care Policy and Financing - said so far, local vaccine providers have been tapped to serve almost 95% of the state's identified homebound population.

"Our goal was, 'How do we leverage local solutions where those are in place?' And so literally going county by county, region by region in Colorado so that we could understand what local solutions they had in place, and how as a state entity we could support them," said Silva.

Silva's team surveyed city and county health agencies, and identified fire departments, ambulance services and other providers who were able to bring vaccines directly to homes.

Vaccines are administered to homebound residents and anyone else nearby who wants one.

To reach people of color and traditionally harder-to-reach communities, Silva said regional agencies worked with trusted voices including church leaders and nonprofits including ARC of Colorado and the Colorado Cross Disability Coalition.

Silva said the biggest blind spot continues to be people who are homebound or experiencing homelessness and unable to travel, but are not connected to services. She encouraged all Coloradans to help her team reach those who want vaccines by calling their toll-free hotline, 1-877-COVAXCO, or 877-268-2926.

"Call on behalf of maybe a neighbor or friend," said Silva. "Just really make sure that every Coloradan who wants the vaccine is able to get one, and to hear that we have the infrastructure in place to make sure that they are, in fact, able to get it."

The Colorado Department of Health has issued a request for proposals, to find a single vendor to manage the work of getting health services to the state's homebound residents over the longer term. The contract is expected to be awarded by mid-July.