NEW YORK -- If you're looking for a unique gift for Valentine's Day, you might consider giving some peace of mind -- by deciding and sharing what type care you'd want in a health crisis.

The COVID pandemic has brought new urgency to the need for end-of-life planning. It may seem like an unlikely theme for a song, but the not-for-profit organization Compassion & Choices has put its advice to music to encourage people to prepare advance directives for end-of-life care.

Kim Callinan, the group's president and chief executive, said she hopes the song will help people find new ways to share messages of empowerment, gratitude and the importance of making plans aligned with their personal values and priorities.

"Valentine's Day is a time when you show your loved ones that you care about them," she said, "and one way to show that you care is to give the gift of clarity by documenting and discussing your end-of-life preferences."

The song, "This Is Your Show," features Broadway and film star Carmen Ruby Floyd. Callinan said the second verse captures the core message with the words, "You have the option to write your last chapter."

Brandi Alexander, national director of community engagement at Compassion & Choices, noted that surveys show African Americans are more likely to choose aggressive treatment to prolong life, but this group also is less likely than others to prepare advance directives, to let people know their wishes for end-of-life care.

"A lot of it has to do with a history of mistrust with the medical community, and really just not wanting to have the discussion," she said, "and therefore, we don't talk about it until it's almost too late or until we're in a time of crisis."

Alexander added that when her father died without making his own end-of-life wishes clear, it caused disagreement and tension in her family as they tried to decide what he would have wanted.

Callinan urged people to go through the process of deciding what level of care they want, and then communicating those wishes. The organization's website has a plan-your-care section that is free to use.

"That has a simple checklist that helps them to learn what priorities are most important to them and how to fill out an advance directive, how to make sure your doctor's aware of what you want; having conversations with your health care proxy and your loved one," she said.

She pointed out that end-of-life planning and discussions are about love, and how you or your family want to be cared for.

It's been one year since the largest health care strike in U.S. history, and union members say they've seen changes since their 2023 victory.

More than 85,000 workers at Kaiser Permanente in Oregon and four other states conducted a three-day strike in October 2023, and won a 21% wage increase over four years.

Keven Dardon is a patient access representative with a Kaiser Permanente Sunnyside Medical Center in Clackamas, and was a member of the negotiation team with Service Employees International Union Local 49 during the strike.

He said there were risks involved in the strike.

"This wasn't an easy decision for us," said Dardon. "It took a lot of time, planning and speaking - to not just our peers but our families - regarding what striking would mean to us and how, you know, it would affect our stance and our income to be able to do that for those three days."

Dardon said health care workers wanted to address the demand from the growing Portland region. SEIU Local 49 says members won the largest wage package in 25 years.

Dardon said the biggest concerns for workers were understaffing and turnover. He said they've teamed up with management to analyze the staffing needs of departments in their hospitals.

Dardon said more staff benefits patients.

"Ultimately, this means more availability to see providers," said Dardon, "and overall it's a huge victory for us because we're able to start getting the manpower that we need, to be able to meet the demand of the city and be able to really see our patients in a timely manner."

The Kaiser strike was among many strikes that took place last year, and have continued this year - such as with the recent longshoreman's strike. Dardon said the actions have been empowering to see.

"Companies are seeing record profits and we're the backbones of the company, right?" said Dardon. "We're the ones that show up every day on time, we do the work, we see the patients or we see the customers - and we deserve to be rewarded for the hard work and for the profits that these companies are earning."

Experts warn health insurance premiums could rise an average of $1,000 a year for more than 2 million Californians who buy coverage on the individual marketplace, unless Congress extends subsidies from the Inflation Reduction Act.

The nonprofit Health Access California has federal data by congressional district.

Rachel Linn Gish, director of communications for the advocacy group, said for example, 140,000 people in the Central Valley alone benefit from the subsidies.

"As Congress is considering taking action to make these federal subsidies permanent, we want to make sure that Congress members know just how their constituents are going to be impacted by these health care decisions that they're about to make," Gish emphasized.

Linn Gish wants Congress to take up the issue soon because CoveredCA is working now to set rates for 2026. At a recent Senate Finance Committee hearing, Sen. Mike Crapo, R-Idaho, criticized the Inflation Reduction Act, which passed without a single Republican vote and said permanently extending the subsidies would contribute $325 billion to the federal deficit over 10 years.

A recent report from the University of California-Berkeley and the University of California-Los Angeles found enhanced tax credits through the Inflation Reduction Act save Californians $1.7 billion per year.

Gish pointed out the federal dollars have allowed state funds to flow toward programs to zero out deductibles and eliminate copays on many CoveredCA plans.

"If we lose the federal support for the premium help, then we may need to shift state dollars to backfill that," Gish cautioned. "Therefore consumers could also see spikes in their deductibles and other out-of-pocket costs for health care."

A recent study from UC Berkeley and UCLA predicted an additional 69,000 Californians could become uninsured due to increased premium costs if federal subsidies are allowed to expire next year.

Montana's expanded Medicaid program is set to expire next year. People who rely on it are calling on lawmakers for an extension but opponents argued Medicaid was never meant to be a long-term option for most people.

The Montana Legislature voted during its last session to expand the state's Medicaid program to cover an additional 85,000 people.

Megan Martin, a small-business owner and mother in Helena who relies on Medicaid, said she is out of health care options if the state does not extend it.

"I have looked and have been told that I could get health care off of our federal marketplace, which I don't qualify for," Martin explained. "That's terrifying because I don't make a ton of money, being a small-business owner. So, not having any other option is scary."

Gov. Greg Gianforte has not been clear on whether he supports an expansion but has said Medicaid should be a temporary program to help people get back on their feet. Data from KFF Health News show 9% fewer Montanans are covered under Medicaid now than before the pandemic.

Montana's Medicaid expansion is largely funded under the federal Affordable Care Act but is administered by the state, which is why expansion takes a legislative vote. Martin pointed out like many Montanans, she is working multiple jobs just to keep up with her family's cost of living, let alone being able to afford health care.

"How many more jobs do I have to get? How much more hustling do I have to do? How much more money do I have to put in my pocket, in order to make sure that we're all healthy?," Martin asked. "Nobody should have to worry about that, at the end of the day."

The Legislature is scheduled to consider extending the Medicaid expansion when lawmakers convene in January.


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