More than 3.7 million people with disabilities live in New York, according to the federal government, and they just got a new advocate in the governor's office. Gov. Kathy Hochul has appointed Kimberly Hill as the state's first Chief Disability Officer to advance and advocate policies to support New Yorkers with disabilities.
Sharon McLennon-Wier, executive director of the Center for Independence of the Disabled New York, said she hopes Hill will focus policy recommendations on a few areas - including transportation, health care, housing, education and job creation.
"Preparing people with disabilities to enter the labor market is important," she said, "so having that foundational base of education that leads to gainful employment is critical."
According to the governor's office, only about one-third of New Yorkers with disabilities are employed, and the state ranks 38th in the nation in its employment rate for this group of workers. Through the annual state budget, Hochul also is pushing for $240 million in additional funding for private schools serving children with disabilities.
At a news conference this week, Hochul said her 2022-2023 executive budget also calls for tens of thousands of supportive housing units for folks with disabilities, as part of her broader $25 billion affordable-housing plan.
"We need to make sure that we are meeting people where they are," she said. "They need to have not just a roof over their head, but a roof over their head and services sometimes, that also allow them to excel in that environment."
According to the federal Bureau of Transportation Statistics, more than 25 million Americans age 5 and older have some form of disability that can limit their ability to travel. McLennon-Wier said the Chief Disability Officer also is tasked with removing barriers for those folks.
"And having any type of barriers within the transportation system is going to prevent you from doing the basest things," she said, "like being able to go vote, being able to go to the supermarket to buy food and being able to get to work on time."
In a written statement, Hill said she's looking forward to "working toward a more integrated, inclusive and accessible New York." Hill has held many roles in state government advocating on behalf of New Yorkers with disabilities, most recently with the New York State Assembly's Standing Committee on People with Disabilities.
Disclosure: Center for Independence of the Disabled New York contributes to our fund for reporting on Disabilities. If you would like to help support news in the public interest,
click here.
get more stories like this via email
Utah lags behind the national average of identifying children for autism.
In an effort to improve the state's standing, the Institute for Disability, Research, Policy and Practice at Utah State University will offer free, remote early identification of autism training for Utah service providers.
Janel Preston, special educator at the university, said when early identification is missed, children and families are not getting critical services to increase overall quality of life.
"It is really important for providers, as well as just the general public, to have a better understanding of what autism is," Preston urged. "And how we can help support and increase that awareness, acceptance."
Data from 2020 show 10 Utah children per 1,000 were identified to have autism by age 4. The national average is more than 20 per 1,000. Preston pointed out the Autism ECHO sessions will start on Sept. 25 and will aim to give educators, providers, case managers, administrators and families the tools they need to improve identification.
Preston acknowledged it is hard to pinpoint why Utah falls behind in the early identification of autism but suspects it could be due to lack of access. She added in comparison to other states, Utah is pretty rural, which can pose unique challenges.
"If you live along the Wasatch Front you have access to a lot of things," Preston explained. "But coming maybe from San Juan County, that is a long drive into the Wasatch Front, which requires families to take time off from work, if you have a child that is not able to make transitions very easily that can then cause a ripple effect."
Preston added children who go years without being diagnosed can struggle to navigate interactions with peers, manage school work and get a job later in life.
Preston hopes the program provides all kinds of Utahns the ability to foster connections and community.
"I could say, 'Hey, I have this kid or this family, this is what is going on, what are some things that I could do? What are some resources that I might not be aware of?'" Preston emphasized.
get more stories like this via email
A Nevada program is aiming to centralize transition services and improve outcomes for children with disabilities.
It will help create a centralized hub for children and young adults to explore career and postsecondary opportunities. The initiative will also offer professional development to service providers in an effort to enhance and increase the availability of resources.
Jennifer Kane is the project director of The Nevada Transitions Roadmap through Innovative Partnerships. She explained last year the state's Department of Education secured a $10 million grant from the federal government, which will be used over the next five years.
"There isn't really a system that takes us from age 10 to age 24 by itself," Kane pointed out. "If they're trying to get us to a truly seamless transition, they gave us an age range which we have to work together to get there."
Kane noted the program will be approaching the end of its first year later this month. She added just last week, it had its first Nevada TRIP Advisory Work Group meeting to bring together stakeholders, including significant participation from children and youths with disabilities and members of their support systems.
Ashley Price, co-project director for the Nevada Department of Education, said one of the main goals of Nevada TRIP is to cultivate strong partnerships with agencies and break down the state's current siloed systems presenting significant challenges to families.
"One very unique thing about Nevada is how rural Nevada is," Price emphasized. "So of course we get a lot of concentration in Washoe County and Clark County, and the rest of the state struggles. They might not have certain age ranges of students and young adults who have needs and then all of a sudden they do."
Price added many people across Nevada simply do not know what resources and support are available.
"Even as we are diving through this, trying to map out different agencies and different resources we're learning new things that we had no idea and that we are going to go ahead and include," Price explained. "That's probably the biggest misconception, is that people don't know that there is help or don't think there is help where they are."
On the flip side, Price stressed many agencies are ready to help but cannot find the necessary recipients, which is precisely one of the areas Nevada TRIP aims to help bridge.
get more stories like this via email
Thirteen students, ranging in age from 14 to 21, have just graduated from the Iowa Developmental Disabilities Council Youth Leadership Academy.
The program's goal is to develop young leaders who learn skills that build their confidence.
A dozen students from Iowa welcomed one from Illinois who is attending school in Iowa. Together, they learned during the weeklong academy how to be more effective advocates for their communities.
That's exactly what 21-year-old Andrew Allen, who has been diagnosed with ADHD, autism and severe separation anxiety, was looking for when he applied.
"I got bullied a lot," said Allen. "When I was in school, I got pushed aside a lot and I thought, 'Enough is enough.' They taught me how to communicate, have conversation with special needs, and help our community."
The annual academy teaches students ways to advocate for themselves, become more civically engaged and to be of service in their communities.
19-year-old University of Iowa student Jackie Corless, who said she has an intellectual learning
disability, also took part in the Youth Leadership Academy.
She said the topics ranged from advocacy to communicating, and lots of useful skills in between.
"Leadership skills," said Corless. "I learned about networking, setting goals - you know, the difference between how to be an advocate and how to better strengthen your advocate goal. How networking really works within the disability world."
The Youth Leadership Academy is a partnership between the Iowa Developmental Disabilities Council, Disability Rights Iowa, ASK Resource Center, the University of Iowa Center for Excellence in Developmental Disabilities, and Access to Independence.
get more stories like this via email