Corrección: El nombre de la organización es Compassion & Choices. Una versión anterior de esta historia nombró la organización incorrectamente en idioma español. (3:30 p.m. MST. Abril 15, 2022)


Este sábado es el Día Nacional de Decisiones de Salud. Es un recordatorio de que todos deben tener planes en caso de que necesiten atención médica y no puedan manifestar sus deseos.

Un grupo conocido como Compassion & Choices aboga por la ayuda médica para morir, para personas con enfermedades terminales. Kim Callinan es la presidenta y directora ejecutiva del grupo. Ella dice que tener Directivas Anticipadas para Fin de Vida no solo es importante para la persona, sino también para su familia.

"Uno de cada dos adultos mayores ahora muere con o a causa de la demencia y, desafortunadamente, la mayoría no esta planeando cómo será el final. Y sin planificación, estás dejando a tus seres queridos y cuidadores teniendo que tomar decisiones desgarradoras sobre la atención que recibes o no recibes al final de la vida," añadió Callinan.

Agrega que existe una necesidad aún mayor en la comunidad latina, que según las investigaciones es el grupo con menos probabilidades de completar las instrucciones médicas anticipadas. Compassion & Choices tiene una Guía de decisiones para el final de la vida tanto en español como en inglés.

Texas se encuentra entre los 10 estados con más muertes por Alzheimer, y de los aproximadamente 6,2 millones de estadounidenses mayores de 65 años con enfermedad de Alzheimer, más de la mitad son mujeres. Las mujeres también son más propensas a tener otras formas de demencia.

Callinan argumenta que los avances en la medicina han prolongado la vida de muchas personas, pero en algunos casos, esto también puede conducir a años de sufrimiento.

"Con la planificación, puede interrumpir el sistema y tener un final mucho más compasivo. Sin planificación, está sujeto a un sistema de atención médica que se centrará en prolongar la vida, lo que, en el caso de alguien con demencia avanzada, a menudo prolonga el sufrimiento," mencionó también Callinan.

Callinan reconoce que no es fácil tener estas conversaciones con los seres queridos, pero dice que hay recursos disponibles para ayudar.

"Para el Día Nacional de las Decisiones de Atención Médica, alentaría a todos a tener conversaciones con sus seres queridos sobre la atención que desearían al final de la vida. Y, en particular, use nuestra Herramienta de Valores y Prioridades de Demencia, para que pueda documentar sus preferencias de atención para salvaguardar su futuro," aconsejó Callinan.

En Texas, más de 1 millón de familiares y amigos brindan atención no remunerada a personas con demencia, dedicando casi 2,000 millones de horas al año, atención que de otro modo le costaría al estado más de 25,000 millones de dólares.

People who are part of the Deferred Action for Childhood Arrivals program, known as DACA, will be dropped from their CoveredCA health plans at the end of August.

The move comes after the Trump administration changed a Biden-era definition of "lawfully present" to revoke health care eligibility for thousands of immigrants.

Christine Smith, policy and legislative advocate for the nonprofit Health Access California, said people only have a few weeks to get medical appointments in before their coverage ends.

"If you're enrolled in Covered California and you're a DACA recipient, the Trump administration just ended your coverage," Smith emphasized. "People should use as much of your health care as you can before the August 31st deadline."

The Centers for Medicare and Medicaid Services defended the move, saying it will save taxpayers money. CoveredCA estimated the change affects about 2,400 DACA recipients in the state who make too much to qualify for Medi-Cal and have jobs not providing health insurance. They can still buy private insurance but it is much more expensive. People who prepaid for their coverage can seek a refund.

Smith predicted it will be a blow not just to those who lose coverage but to the state's health care system as a whole.

"The lines in the ERs are going to be longer because people are not going to be able to get affordable preventive care," Smith projected. "They're just going to get sicker and then end up in the ERs. People will overall incur more medical debt. Hospitals will have more uncompensated care."

The change is nationwide. As of mid-July, about 538,000 people in the DACA program across the U.S. are ineligible to enroll in any state-based insurance marketplace and are unable to access premium subsidies or cost-sharing assistance.

Artificial intelligence is appearing more prominently in many aspects of life and research suggests older populations are curious, yet remain wary of using the technology in their everyday lives.

According to Stats Indiana, there are more than 1.5 million Hoosiers aged 65 and older, or 18% of the state's population. Experts said it is likely the demographic will use AI in some form in the next few years, either by choice or necessity.

Dr. Shaun Grannis, vice president of data and analytics for the Regenstrief Institute on Aging, said AI offers real benefits.

"It can reduce loneliness through conversation, provide reminders for medications and appointments," Grannis outlined. "It can support cognitive stimulation via games, storytelling, news updates."

The technology can also offer a low-pressure way to access information on public services, he added, which is valuable for those with mobility issues or those who feel intimidated by technology.

Grannis cautioned any tool which can be used for good can also lead to problems. He noted AI can create a false sense of companionship and mask social isolation. Overdependence is a legitimate concern, he argued, if the technology becomes a "crutch" for all forms of interaction.

"All cognitive activities or decision-making, it can actually lead to and create a negative feedback loop, lead to a decline in engagement and even basic self-management skills," Grannis explained. "This is risky."

Grannis believes one solution is designing AI systems to complement, not replace, human interaction. He stressed it can be done though building broader support ecosystems including family, friends, caregivers and community services. Grannis emphasized it would encourage real-world activity, prompting the user to go for a walk, call a grandchild or attend a local senior event.

If you have an extra five minutes, you can save a life because you can learn cardiopulmonary resuscitation at no cost from a new mobile, hands-only CPR kiosk.

The new kiosk is in the lobby of Saint John's Health Center in Santa Monica. The machine's touch screen gives a brief overview of hands-only CPR and you can practice right there, on a mannequin.

Dr. Rigved Tadwalkar, cardiologist at St. John's, said it is an easy way for people to get more comfortable giving chest compressions in an emergency.

"It's a lot like a video game but of course, a lot more important than a video game," Tadwalkar pointed out. "It gives real-time feedback about the depth and rate of compressions, proper hand placement, which are all factors that influence the effectiveness of CPR."

The American Heart Association operates the St. John's mobile kiosk and a stationary model at L-A-X with support from the hospital. Santiago Canyon College in Orange County also has a mobile hands-only C-P-R kiosk now through September, sponsored by Edwards Lifesciences.

Steven Munatones, an Orange County business owner, said he survived what's known as a "widowmaker" heart attack which led to cardiac arrest nine years ago, thanks to his 17-year-old son, who gave him immediate CPR with instructions from a 911 operator.

"You don't have to put your mouth to anybody's mouth," Munatones explained. "You just put your hand on their chest and pump. He saved me, and others can do the same, anywhere. So, it's absolutely a lifesaving, heroic act that anybody can do."

Statistics show 350,000 Americans suffer from cardiac arrest outside a hospital each year and about 90% die, in part because they do not receive CPR. About 70% of those cardiac arrests happen at home, so people often depend on family or friends to give CPR before an ambulance arrives.