CHICAGO - For 60 years, Jerry Lewis has hosted the Muscular Dystrophy Association annual Labor Day telethon. And for about 20 years, one of "Jerry's Kids" has been at odds with him over the way the money is raised.

Mike Ervin appeared on the telethon when he was six years old. Now he's a writer and disability rights activist who speaks out against the telethon because he claims it promotes stereotypes of people with disabilities as objects of pity.

At the same time, Ervin says he understands that people who answer the phones and appear on the show mean well.

"Of course we all want to give, but we really need to use the telethon as an opportunity to really seriously think about what charity is. At what point does it become something to deny or to ignore what we have to do?"

Ervin says with the unemployment rate up around 20 percent for people with disabilities, he prefers investments in programs that promote jobs and help people stay out of institutions.

"The infrastructure is still bad. They're still in institutions because services aren't there, and all these problems continue to exist."

Because of stereotypes, Ervin says many people treat him like a helpless person when they see him in his power chair. He cites, for example, an incident outside a coffee shop as he waited for the streetlight to change. A passerby mistook Ervin's newly purchased cup of tea for a beggar's cup.

"A man came out and held out his hand, and his hand had change in it. Then he saw that I had a lid on the cup, and he said 'Oh, shut down for the day, huh?'"

People with disabilities need jobs, not pity, Ervin says. In past years, he has contacted the state attorney general to check the telethon organization's 990 federal tax form to try to get clear info on how much is raised in contrast to how much it costs to produce the telethon.

"That form will tell you exactly what they make and how they make it. And they raise, curiously enough, quite a bit of money without their telethons."

He adds that he has nothing against the Muscular Dystrophy Association raising money, he just thinks the organization should take a different approach. An association spokesman says that they try to portray people with disabilities as leaders in the community.

Disability rights groups have produced a half-hour documentary on Ervin's fight and posted it on the Web. It can be viewed at www.thekidsareallright.org.




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A Texas human-rights advocacy and immigration-reform group opened two new community centers this week to help residents better understand their freedoms under the Constitution.

The El Paso-based group Border Network for Human Rights opened offices in Presidio and Del Rio to carry out community education campaigns. Executive Director Fernando Garcia said more allies are needed to end discrimination at the border.

"The fact that constitutional rights are being violated at the border," said Garcia, "and in many cases, members of our border community do not know what their constitutional rights are - legal residents and U.S. citizens."

Garcia argued that more harassment has ensued following implementation of "Operation Lone Star" - a $4 billion project that included deploying thousands of National Guard troops and state police to the border.

His group has addressed racism, discrimination and human-rights violations for 24 years, but Garcia said he hears substantially more reports of abuse - possibly because law enforcement officers lack training.

"We have Border Patrol, we have ICE, we have Customs, we have ATF," said Garcia. "We have multiple agencies and with them we've been having challenges in terms of how they are respecting civil rights of people - it is absurd."

On Wednesday, a poll of likely Texas voters by Quinnipiac University showed the border ranks as the most urgent issue facing the state.

But Quinnipiac polling analyst Tim Malloy noted that voters are divided - 51% in favor and 47% opposed - to the governor's decision to use taxpayer dollars to bus migrants to Democratic-led cities and states.

"Is this a taxpayer fund issue? Is this more a human issue?" said Malloy. "Is it about the kids who appear disappointed when they end up somewhere they didn't know they were going? I don't know, but despite the fact that top of mind is immigration and the border - there is a empathy out there. "

On the topic of empathy, Garcia said he has none for politicians shipping migrants out of state.

"They are using families, they are using immigrants for a political show," said Garcia. "That is shameful. I mean, to what extent is it acceptable to play with the lives of people, with the hopes of people, just to promote the political agenda."

A new bill in Pennsylvania would provide money for public defenders, who say they're struggling to take on the cases of people charged with crimes who can't afford an attorney.

Senate Bill 1317 would create the Indigent Defense Advisory Committee, and a Grant Fund to provide state-level funding for the public defender system. Currently, the counties kick in to provide this funding, while state dollars go to the state prosecutors.

Sara Jacobson, executive director of the Public Defenders Association of Pennsylvania, outlined why this potential change has taken so long to come to fruition.

"It's some combination of a lack of political will and the amount of money it will take to fund indigent defense adequately," said Jacobson. "It's kind of easy to say, 'Oh well, the counties should take care of that,' and then consider it a problem solved, I guess. I'm glad that our legislators are taking a look at this now."

According to a 2021 report from the state's Legislative Budget and Finance Office, Cameron County spent just over $35,000 on indigent defense in 2020 - a county with a rate of 1,600 crimes per 100,000 residents.

The bill has passed out of the state Senate Judiciary Committee, but Jacobson said it faces an uphill battle in the General Assembly.

The current system has caused the Luzerne County public defenders to stop taking new cases because of a lack of funding. And Jacobson said this is the second time in a decade that budget deficiencies have caused this to happen.

She said she feels the current method of funding public defense is failing the people who need it most.

"Public defenders in Pennsylvania have more cases, more clients, than they can handle," said Jacobson. "This is a job that's required by the Constitution. The Constitution says that the government must provide assistance, and effective assistance of counsel, in criminal cases - and Pennsylvania is falling short."

Pennsylvania is one of only two states where the state doesn't help fund indigent defense. Jacobson said changing the system would allow public defenders to do their jobs more effectively.

As "Banned Books Week" comes to a close, Connecticut libraries have been celebrating with great fervor - despite numerous book bans and challenges, here and across the country.

According to the American Library Association, this year 1,651 books have been targets of attempted bans, mostly by conservative groups or parents who want to restrict kids' access to some topics. They're mostly titles with themes of gender identity, LGBTQ content, or race and racism.

Connecticut isn't immune to these challenges, said Sam Lee, who chairs the Intellectual Freedom Committee for the Connecticut Library Association.

"The big title that we've been seeing challenged is 'Gender Queer' by Maia Kobabe," she said. "It is a graphic novel memoir about e/eir's experience identifying as agender, transgender and that experience."

So far this year, Lee said, there have been about 30 reported book challenges in the state - and there could be others, as they're not always reported to the Library Association. But to keep limitations on literature from becoming the norm, Lee advised everyone to stop by the library to read a book.

Book challenges don't always end with banning a certain title, and there are other ways the Connecticut Library Association ensures that books remain on shelves. Lee said one way this occurs is through librarians, who are trained to provide their patrons access to all types of literature. And there's a particular state law in place that applies to all Connecticut libraries.

"In Connecticut, we have a confidentiality statute covering library records," Lee said, "and that confidentiality statute protects their privacy, and enables them to read freely, and read widely and read privately, without government intrusion."

Lee described the recent book bans as "depressing" - a way to impose control by limiting people's freedoms. She feels restricting reading can even damage the health of a democracy.