Thursday, March 23, 2023

Play

A proposed flavored tobacco ban is back on the table in Minnesota, Trump attorney Evan Corcoran must testify in the documents probe, and a "clean slate" bill in Missouri would make "expungement" automatic.

Play

The Fed raises interest rates and reassures the banking system is sound, Norfolk Southern reaffirms a commitment to the people of East Palestine, and TikTok creators gather at the Capitol to support free expression.

Play

Finding childcare is a struggle everywhere, prompting North Carolina's Transylvania County to try a new approach. Maine is slowly building-out broadband access, but disagreements remain over whether local versus national companies should get the contracts, and specialty apps like "Farmers Dating" help those in small communities connect online.

Long-Range Study Considers Health for “All of Us”

Play

Wednesday, June 26, 2019   

NEW YORK - A new long-term medical study finally will bring the needs of often-overlooked populations into focus.

The "All of Us" research program, expected to last at least 10 years, is designed to help researchers develop precision medical care based on the real-life needs of individual patients. While many large-scale studies tend to look only at select groups, this study hopes to involve 1 million people from the entire spectrum of society.

Elizabeth Cohn, community engagement lead for the New York City Precision Medicine Consortium, said the study of relatively rare conditions can have benefits for health care in general, so broad participation of people with disabilities in this study will have two major impacts.

"There's the immediate benefit of being included in research," she said, "which can be very empowering and also assist in meeting people's needs - and then, the greater vision of better health for our nation."

People who want to participate in the study can register online at joinallofus.org/together.

Jess Powers, director of communications and education for the Center for Independence of the Disabled, New York, said participants will be asked to answer questions about their health, family, home and work, and they'll have options to provide electronic health records and biological samples.

"Depending on how much information people want to share; it's up to them," she said. "The idea is that this data will be anonymized and then available to researchers to make advances in medicine."

The researchers hope people will want to be involved over time in the study, but anyone is free to opt out at any time without penalty.

Speaking not only as a health researcher but also as the mother of a child with special needs, Cohn added that this sort of comprehensive, long-term study is long overdue.

"This is an opportunity for all voices to be heard, for all concerns to be heard," she said. "We feel strongly that the time has come for medicine to be inclusive, as other things are inclusive."

The All of Us study is a project of the National Institutes of Health.

More information is online at allofus.nih.gov.

Disclosure: Center for Independence of the Disabled New York contributes to our fund for reporting on Disabilities. If you would like to help support news in the public interest, click here.


get more stories like this via email
In 2020, 35% of Idaho mothers had Medicaid at the time of their child's birth. (WavebreakMediaMicro/Adobe Stock)

Social Issues

With concerning trends emerging for pregnant and postpartum women, frustration is growing that Idaho lawmakers could end the session without …


Health and Wellness

Health advocates are promoting a package of bills this legislative session to make health care easier to get - and more affordable. The Care 4 All …

Social Issues

A new study from the University of New Hampshire found New England's LGBTQ+ residents experience higher rates of food insufficiency, the measure of …


According to the Center for American Progress, nearly nine in 10 employers, four in five landlords, and three in five colleges use background checks to screen for applicants' criminal records. (Yurii Kibalnik/Adobe Stock)

Social Issues

A large percentage of Missourians who could to have their criminal records "expunged" have not done so, despite the effects expungement -- referred …

Social Issues

A person's work personnel file can be important to review, but some Washingtonians are finding them hard to obtain. A bill in Olympia would ensure …

The most recent Farm Bill covered areas such as agricultural conservation, trade and foreign food assistance, farm credit and research. (Adobe Stock)

Environment

The U.S. Farm Bill is up for reauthorization, and Congress faces calls to avoid any delays so certain programs can keep helping farmers and consumers …

Social Issues

Youth advocates continue to sound the alarm over the impact flavored tobacco products have on teenagers, and hope Minnesota lawmakers take another …

Environment

As wildfire seasons in Colorado and across the American West become longer, less predictable and increasingly destructive, a new report aims to …

 

Phone: 303.448.9105 Toll Free: 888.891.9416 Fax: 208.247.1830 Your trusted member- and audience-supported news source since 1996 Copyright 2021