NEW YORK -- If you're looking for a unique gift for Valentine's Day, you might consider giving some peace of mind -- by deciding and sharing what type care you'd want in a health crisis.

The COVID pandemic has brought new urgency to the need for end-of-life planning. It may seem like an unlikely theme for a song, but the not-for-profit organization Compassion & Choices has put its advice to music to encourage people to prepare advance directives for end-of-life care.

Kim Callinan, the group's president and chief executive, said she hopes the song will help people find new ways to share messages of empowerment, gratitude and the importance of making plans aligned with their personal values and priorities.

"Valentine's Day is a time when you show your loved ones that you care about them," she said, "and one way to show that you care is to give the gift of clarity by documenting and discussing your end-of-life preferences."

The song, "This Is Your Show," features Broadway and film star Carmen Ruby Floyd. Callinan said the second verse captures the core message with the words, "You have the option to write your last chapter."

Brandi Alexander, national director of community engagement at Compassion & Choices, noted that surveys show African Americans are more likely to choose aggressive treatment to prolong life, but this group also is less likely than others to prepare advance directives, to let people know their wishes for end-of-life care.

"A lot of it has to do with a history of mistrust with the medical community, and really just not wanting to have the discussion," she said, "and therefore, we don't talk about it until it's almost too late or until we're in a time of crisis."

Alexander added that when her father died without making his own end-of-life wishes clear, it caused disagreement and tension in her family as they tried to decide what he would have wanted.

Callinan urged people to go through the process of deciding what level of care they want, and then communicating those wishes. The organization's website has a plan-your-care section that is free to use.

"That has a simple checklist that helps them to learn what priorities are most important to them and how to fill out an advance directive, how to make sure your doctor's aware of what you want; having conversations with your health care proxy and your loved one," she said.

She pointed out that end-of-life planning and discussions are about love, and how you or your family want to be cared for.

By Savanna Strott for Eye on Ohio, The Ohio Center for Journalism
Broadcast version by Emily Scott for Ohio News Connection.

COLUMBUS, Ohio - Ohio nursing homes reported more shortages of nursing assistants than any other state during the pandemic, highlighting a problem that has been festering for decades.

An Eye on Ohio and Investigative Reporting Workshop analysis of weekly reported data from the Centers for Medicare and Medicaid Services found that Ohio reported the highest number of shortages in the country for State Tested Nursing Assistants (STNA) in 2020 and through the first half of 2021, leaving critical care positions open and shifting work to other positions suffering shortages of their own.

Ohio has the third-highest number of nursing homes behind Texas and California, and tallied STNA shortages in 26% of reports to the Centers for Medicare and Medicaid Services (CMS). That makes Ohio the 14th worst nationwide for the percentage of nursing homes reporting too few STNAs that same year.

"We just have probably the worst shortage that we've had at least in my 35 years of doing this," said Robert Applebaum, director of the Ohio Long-Term Care Research Project at Miami University's Scripps Gerontology Center. "The industry was in trouble before COVID, and COVID has pretty much put those problems on steroids at this point."

The continuing shortage of nursing assistants, registered nurses and other staff in nursing homes has become a national issue. A June survey from the American Health Care Association and National Center for Assisted Living, which represents more than 14,000 U.S. nursing homes and long term care facilities, found that 94% of nursing homes reported a shortage of staff in the last month. Almost three-quarters of nursing homes said their workforce situation had worsened since 2020.

Quantifying shortages can be difficult because there's no minimum staffing ratios for STNAs on the federal or Ohio state level. But staffing challenges in Ohio's 950 nursing homes were a troublesome issue before nursing homes and other long-term care facilities accounted for almost 40% of Ohio's 20,500 COVID-19 deaths, according to interviews with experts, advocates and nursing home administrators.

With Ohio having the 17th oldest population in the country, the need for elder care - and the workers who provide it - will only grow in the coming years.

"By not raising the wages, by not having better staffing ratios in place, you didn't create an optimal work environment," said Monica Moran, a former organizer and lobbyist for nursing home workers with Service Employees International Union. "And so without creating that best work environment, you have less people interested in working there. And if less people are interested in working there, you have a perfect storm for the pandemic to do even more damage."

Some studies during the pandemic found that nursing homes with higher staffing levels were associated with fewer COVID-19 cases and deaths.

But nursing home administrators who spoke with Eye on Ohio and IRW said their residents wouldn't have fared any better even if there had been no staff shortages during the pandemic.

"What I think it was was a new virus that no one knew anything about," said Mary Jane Klarich, administrator of the Normandy Care Center in the Cleveland suburb of Rocky River. "The shortage didn't affect care, the number of cases or deaths. Everyone was learning and trying to get directions from the CDC."

Now nursing homes face the threat of the delta variant, which is causing a surge in cases and hospitalizations, mostly among the unvaccinated. This, coupled with only 53% of staff being vaccinated, has created concerns about vulnerable elderly residents. However, a Canton assisted living facility recently showed that a delta variant outbreak can be manageable and mild with vaccinated residents and staff.

Still, an incoming federal mandate requiring all staff in nursing homes to be vaccinated is causing concerns that it might worsen the already staggering staffing shortages in Ohio.

"The same challenges that created pain points during the height of the pandemic are the same areas that we will need continued improvement," said Latoya Peterson, the associate state director for Ohio's AARP. "That means meaningful reform around both infection control and staffing in nursing homes, and that includes common-sense legislation."

The shortage

Since Melissa Wilfong started working 18 years ago as a nursing assistant, she said she's seen a "general decline" in the number of STNAs and applications for the position. Wilfong, who has been the administrator at the Ohio Veterans Home in Sandusky since October 2020, said she's seen a decrease even in the number of people pursuing STNA certification.

That decline came to a head during the pandemic as Ohio's reported shortages remained above the nation.

In the inaugural year of COVID-19, Ohio's nursing homes reported STNA shortages in 26% of reports to CMS, compared with the national median of 21%. While about a quarter of reports in the state claim an STNA shortage, the national median fell to 18% in 2021, widening the gap between the Buckeye state and the rest of the country.

"The workforce challenges predated the pandemic," Peterson said. "But they became untenable during the pandemic."

Defining a shortage for STNAs and the effects of a reported shortage can be difficult without mandatory staffing requirements. Federal legislation through the Nursing Home Reform Act of 1987 gave standards for LPNs and RNs, but only required that nursing homes have "sufficient staffing" - no specific ratios - for nursing assistants.

Because of this, reports from nursing homes of staffing shortages during the pandemic are estimates. Instead of providing numbers of filled positions or openings, nursing homes answer yes-or-no questions if they have a shortage for different positions.

Nursing homes usually under report on such forms, Miami University's Applebaum said.

"So the fact that they're reporting these numbers as that, as high as they are, to me it's kind of scary," Applebaum said.

Shortages don't look the same from nursing home to nursing home, Wilfong said, noting that her Sandusky veterans home reported having an STNA shortage every week since data collection began in May 2020. Wilfong said she reported STNA shortages because there were open positions, but the facilities never reached a critical level.

At her previous job at a private nursing home, Wilfong said staffing levels did become untenable.

'A really hard job'

Though STNAs provide vital, direct care and companionship to residents, Wilfong said, the position doesn't receive the respect it deserves.

"They are the ones that are holding their hands when they're sick, when they're scared." Wilfong said. "They've been their families this whole pandemic because their families couldn't come in, so the aides are a vital role in any facility because they are the bedside person."

Activists, experts and nursing home administrators who talked with Eye on Ohio and IRW said that wages and workloads for STNAs were a factor in Ohio's shortage.

"With the low wages that are paid to STNAs in nursing homes, you have people who could go to McDonald's or Taco Bell and get a job that paid about the same,"said Moran, the former labor organizer. "So you're talking bottom dollar for some of these nursing facilities and a really hard job with a high level of commitment for a low wage. And that drives people out of the industry."

Data from the Paraprofessional Healthcare Institute shows that Ohio nursing assistants across health care industries, including nursing homes, hospitals and assisted living facilities, made a median hourly wage of $13.61 in 2019, about $1 less than the national median of $14.83 for all nursing assistants nationwide.

At The Normandy Care Center in suburban Cleveland, the starting hourly wage for STNAs is $14 or more based on experience, which Klarich said is a comparable wage based on a recent market survey. She added that STNA wages have to be proportional to other positions, such as licensed practical nurses and registered nurses, that require more education, licenses and skills.

At Sandusky Veterans Home, a union facility, the starting wage is $17.32 and has risen between 30 and 50 cents a year since 2016, according to internal data provided to Eye on Ohio and IRW.

But nursing home administrators were quick to point out that Ohio's critical shortage of STNAs comes at a labor shortage in the state and in the country.

"Now you're competing with pretty much the entire county because everybody is competing for that same pool," Wilfong said.

Both Wilfong and Klarich listed other businesses that offer similar or higher pay to STNAs that are also struggling to fill positions.

Klarich said increased pay alone can't help fill STNA holes: Applicants have to want to work with the elderly.

"They have to be a compassionate person that wants to help another person," Klarich said. "You have to derive some type of job satisfaction from helping and working with the elderly."

Part of this is because of the hard work STNAs have to do, Klarich said, work that became harder in the pandemic.

"It wasn't necessarily, in some cases, only staffing shortages that existed before," said Michelle Shirer, Ohio AARP's director of communications. "It was staffing shortages that existed before, plus a demand and an increase of staffing needs and what people could do."

Shirer said STNAs and other nursing home workers had the added workload of adjusting to changes from the pandemic, including sometimes becoming caregivers outside of work for family members who became sick. Inside nursing homes, STNAs workload grew as family members who often provided care for residents, such as helping them with feeding or bathing, were unable to visit.

Anthony Caldwell, vice president of public affairs for SEIU, the union that represents some nursing assistants, said he had heard stories of nursing home workers who were unable to take time off, had insufficient personal protective equipment and had to work more than their scheduled hours.

While health care workers across the country were celebrated as heroes for battling on the frontlines of the pandemic, Caldwell said the hero label was a "slap in the face" for STNAs who walked into low-wage jobs with poor benefits.

"And I just can't understand enough how much it infuriated people, especially the workers that I talked to, to see these big 'health care heroes' signs on the front of the nursing home more as a marketing gimmick than anything," Caldwell said. "But then once they got inside the facility, they didn't feel that they were treated as heroes."

This collaboration with Eye on Ohio is produced in association with Media in the Public Interest and funded in part by the George Gund Foundation.

LOUISVILLE, Ky. -- One in five unvaccinated Kentuckians say they are open to getting the COVID-19 vaccine, according to a new poll from the Foundation for a Healthy Kentucky.

The state's hospitals are filled with COVID patients, and according to Gov. Andy Beshear, about 90 beds are left in Intensive Care Units. Sixty-six Kentucky hospitals report "critical" staffing shortages, and at least two dozen will soon receive backup help from the National Guard.

Ben Chandler, CEO of Foundation for a Healthy Kentucky, sees the poll results as encouraging, showing there are still people open to learning more about the vaccine, so they can be better protected against serious illness and death.

"That's really good news, I think," Chandler remarked. "We've got a chunk of people there who have yet to be vaccinated, but who plan to get vaccinated."

State data showed the week of Sep. 12, the state's seven-day average COVID-19 positivity rate was 13.88%, the highest recorded since Kentucky had adequate testing supplies.

In the poll, one in three Kentuckians reported "always" wearing a mask in an outdoor, crowded public space. More than one-quarter of those who have received the COVID-19 vaccine said they never wear a mask, while almost four in ten who are not vaccinated stated they never wear a mask.

"But the vast majority, 70% of Kentuckians, think that the kids ought to wear masks in schools if they're not vaccinated," Chandler reported.

While some are keeping an open mind, more than one third of the unvaccinated people surveyed said "nothing" will motivate them to get the shot. Around 14% of unvaccinated respondents said they want "more time and research to be conducted" before they'd roll up a sleeve.

Chandler contended it is important communities focus outreach efforts on those individuals.

"And I think we need to reach out to those people and make sure that they know these shots are available, and let them know how they can get the shot," Chandler urged.

He added the Foundation for a Healthy Kentucky is offering $20,000 "mini-grants" to help local groups create new or expand their COVID-19 vaccination outreach efforts.

LAS CRUCES, N.M. -- A new study showed people who do not have a close friend or family member who has experienced a run-in with COVID-19 are more likely to express vaccine hesitancy than those who know someone who has been sick.

Jagdish Khubchandani, public health sciences professor at New Mexico State University, one of the researchers to probe vaccine hesitancy and reasons for it, said study participants were asked if someone in their social circle had been infected, hospitalized or died due to COVID-19.

"And those who said yes are more likely to accept a vaccine," Khubchandani reported. "So those who do not know anyone who has died in family or friends or hospitalized are two times more likely to deny a vaccine."

The study was published last week in the International Journal of Environmental Research and Public Health. It included 1,600 participants, with about 80% reporting they received at least one dose of a COVID-19 vaccine. Of the remaining participants, 10% said they planned to get it, while 11% said they would not.

Khubchandani said vaccine refusal in the study group was higher among non-Hispanic Black people, political conservatives, independent-leaning voters, suburban dwellers, people with less than a college education and non-married individuals.

He believes hesitancy has been caused in part due to inconsistent messaging from the federal government about vaccines and about wearing masks.

"Vaccine hesitancy is a very complicated topic," Khubchandani acknowledged. "I've always said global health crises are also information and communication crises. We have no strategy to deal with the issue."

The Biden administration has avoided vaccine mandates until last week, when it announced vaccinations or proof of weekly testing will be required for federal government employees, including those in the health-care sector.