LANSING, Mich. - Organizers of a summit about sexual health will provide a safe space on Friday for young Michiganders to have open, honest and affirming conversations about HIV prevention and care.
More than 15,000 Michigan residents live with HIV, and the stigma associated with it often keeps people from getting tested and knowing their status.
Natasha Thomas, Genesee County program coordinator for the Michigan Organization on Adolescent Sexual Health, said it's important that young people are able to talk about HIV and sexual health.
"HIV is something that we should be aware of, it's something that we should be educated about, but it's not necessarily something that we should fear," she said. "It's not something that we should stigmatize."
She said the "HIV and You(th) Summit" is geared toward folks ages 13 to 24 and adults who work with youths. It will feature workshops on knowing your own medical rights, what it means to live with HIV, medications for prevention and care - such sa PrEP and PEP - and laws and history surrounding HIV and the LGBTQ community.
Thomas added that it's also important that conversations about prevention and care debunk myths about HIV and how it is transmitted. She said there are few spaces where young people can go to get up-to-date, medically accurate information about sexual health.
"A lot of young people then turn to their peers, or they turn to the internet," she said, "where they then have to kind of weed through all of this information - some of it accurate, some of it not."
Thomas said she hopes attendees will leave the summit with resources and services they can look to, on an ongoing basis. Health experts urge people who are sexually active to learn their HIV status through regular testing at a clinic, hospital or community health center.
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Once viewed as an automatic death sentence with the first diagnosis in 1981, HIV today is met with effective treatment options. Today is National HIV Testing Day, which encourages people to get tested to determine if they are infected. Testing is free and confidential at multiple sites around the country.
Alan Witchey, president and CEO of The Damian Center, an Indiana AIDS service organization, said testing for the virus is simple.
"You can come in and get your status in minutes. It's a rapid test," he explained. "It's just a pin prick to your finger and you can get your status in minutes, so it's worthwhile going and finding out."
According to the Centers for Disease Control and Prevention, in Indiana, 540 new cases of HIV were detected as of January 2022 - currently, there are 13,900 people living with HIV in the state.
The agency also says an estimated 1.2 million people in the United States had HIV at the end of 2021. Of those people, about 87% reported being aware they were HIV positive. Witchey admits the urgency and attention to the diagnosis and treatment of HIV and AIDS has faded over time due to medications that help infected people live long and healthy lives, but added it is a misnomer to believe the HIV and AIDS epidemic is over.
"The epidemic is still going on in central Indiana," he said. "We had 300 new cases last year. There are about 1,000 people in central Indiana that are living with HIV and don't know it."
Witchey added often people will get diagnosed later, and they may already feel ill or have side effects related to the disease - which is why it is so important to get an early diagnosis. A 2020 study by 'aidsvs.org' found that 76% of people who developed AIDS had a late HIV diagnosis, which is defined as having an AIDS diagnosis within three months of testing positive for the HIV virus.
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Today is National Black HIV/AIDS Awareness Day, and advocates say barriers remain when it comes to testing and social stigma. More than 40% percent of people currently living with HIV are Black, despite accounting for only 12% of the U.S. population.
Laura Cheever, associate administrator with the HIV/AIDS Bureau, Health Resources and Services Administration, said viral suppression treatment, in the form of daily medication, has allowed most HIV patients to live a successful and near-normal lives.
"So it's no longer a death sentence," Cheever said. "So, that's really important. And second, that person cannot transmit HIV sexually to other people. So it's important both for their health and for our work towards ending the HIV epidemic."
More than 87% of Black Americans living with HIV/AIDs are receiving medical care and viral suppression drugs, according to federal data. Cheever added that is a huge increase from the number of Black patients receiving treatment in 2010.
In 2020, North Carolina ranked in the top ten states for new HIV cases among adults and adolescents, with more than 1,000 residents newly diagnosed, most of whom are Black men, according to the Centers for Disease Control and Prevention.
Cheever said an ongoing challenge, especially in rural areas and in the South, is encouraging people to get tested.
"One in eight people living with HIV don't know they have it," Cheever said. "So, we need better testing. And we need people to come in here and stay in care, we estimate that of the 1.2 million people with HIV in this country, 250,000 are out of care. "
According to research focused on the deep South, common barriers to testing include transportation, cost, not knowing where to receive specialty care, stigma, and fear of others in the community finding out.
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Today is National HIV Testing Day, and doctors and advocates for people living with HIV and AIDS are urging everyone to make sure they know their status by getting tested regularly.
People living with HIV can take medication to suppress their viral load to undetectable levels, at which point, they cannot sexually transmit the virus to someone else.
Dr. Laura Cheever, an infectious disease physician and associate administrator of the HIV/AIDS Bureau in the Health Resources and Services Administration, said about 1.2 million people in the U.S. have HIV according to the Centers for Disease Control and Prevention, but one in eight does not know it.
"For a lot of people, there's still a lot of stigma around HIV," Cheever acknowledged. "They just don't want to know or don't want to have to deal with it. So, it is important to understand that HIV is a highly treatable disease."
Cheever added another reason some people do not get tested is, they assume their primary-care doctor takes care of it at their annual checkup, or when getting blood tests done at an urgent-care clinic or emergency room. But she cautioned most times, HIV testing is not a part of those appointments.
The New Hampshire Department of Health and Human Services receives funding from the Ryan White HIV/AIDS program, as do cities and community-based organizations, to make sure testing and care are available. Cheever pointed out the funds go to providing medical care, doctors' visits, medication, lab work and essential support services, such as transportation or emergency housing.
"You can go to the CDC website, gettested.cdc.gov, and there you can put in your ZIP code and find a place to get tested near you," Cheever explained. "There are many places now where you can go to get free or low-cost testing mailed to your home, so you can do self-testing in the privacy of your own home."
For many people living with HIV, Cheever said treatment is one pill a day, and she added for those who may not have insurance or be able to afford the prescription, the Ryan White program can help.
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